Huntington's NSW

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News articles

Prof Elizabeth McCusker interview

Published date: 25 November, 2020

Special guest speaker at our 2020 annual general meeting to recognise her retirement after many years as both a clinical and research leader.
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GSNV Wellness Week 2020

5 Days of Wellness webinars

Published date: 9 November, 2020

Our partnership with GSNV provides an opportunity to get access to a week of events organised to support people in Genetic Support Groups. Wellness Week (November 16th-20th) offers activities for Supporting the supporters. To learn more about the FREE activities and to RSVP for one or two (or three based on availability!), please find the ... Read more
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Spring 2020 newsletter

Published date: 21 October, 2020

Read our HD News Spring 2020 edition.
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Walk 4 Hope Speers Point update

Published date: 8 September, 2020

***VIRTUAL WALK4HOPE SAT 12 SEP 2020***
But we are asking you to still register and walk your way, anywhere, anytime.
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young board members

We are recruiting Board Members

Published date: 26 August, 2020

Could you become a Board Member of Huntington’s NSW ACT? Or even the next Chairperson?
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Our submission to the Disability Royal Commission

Published date: 29 July, 2020

Five Huntington’s state associations have collaborated on a submission to the Disability Royal Commission. You can download and read the submission HERE.
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HD News Winter 2020

Published date: 16 July, 2020

Renew your membership before 31 July to be in the ballot for a free weekend in a donated holiday house near Wollombi!
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Neurological Alliance Australia – Statement on Expanded Telehealth

Published date: 25 June, 2020

The Neurological Alliance Australia has today issued a Joint Position Statement calling on the Australian Government to permanently extend the amendments made to MBS telehealth items introduced in response to the COVID-19 pandemic. These supports are currently scheduled to cease after 30 September 2020.  The members of the NAA, representing adults and children living with ... Read more
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UPDATE from ROCHE clinical research program into HD drugs

Published date: 21 April, 2020

ROCHE / GENENTECH have released a statement: Update on tominersen (RG6042)* Huntington’s disease (HD) clinical programme: Recruitment into GENERATION HD1 clinical trial has been completed You can read the statement in full here.
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Exercise at home – for HD families

Published date: 15 April, 2020

We would like to share some information with you that you may find useful to help you stay as active as possible during this time. We believe that it is important for you to do some structured exercise every day to help you maintain strength and balance.
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Huntington’s NSW ACT acknowledges the Australian Aboriginal and Torres Strait Islander peoples as the first inhabitants of the nation and the traditional custodians of the lands where we live, learn and work.
Huntington’s NSW ACT is committed to embracing diversity and eliminating all forms of discrimination. Huntington’s NSW ACT welcomes all people irrespective of ethnicity, lifestyle choice, faith, sexual orientation and gender identity.

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