1800 244 735

How we are funded

The Association’s total income of $930,353 in the year to 30 June 2023 was derived from the following sources:

  • Fundraising, donations and bequests 33%
  • Foundation and other grants 19%
  • Government grants 7%
  • NDIS fee for service 39%
  • Membership and other revenue 2%

Find our Huntingtons NSW ACT – Financial Statements 2023 here.

The Association’s Annual Report can be found here.

We would like to acknowledge the generosity of individuals, groups, and organisations that have supported Huntington’s NSW ACT during the 2022 – 2023 financial year.

  • Our major donors and foundations
  • Our regular giving families and individuals
  • Hunt 4 Hope Op Shop in Maroubra who donate their profits to the association.
  • The generous benefactor who has partnered with us to initiate a Youth Scholarship Program.

Corporate Partners

  • The Co-Group Ltd

Government Partner

  • NSW Health Western Sydney Local Health District
  • NSW Health Mental Health Branch
  • NSW Government Social Sector Transformation Fund (tranches 1, 2 & 3)

Health and Allied Health Professionals

  • Prof Clement Loy, Director NSW Huntington Disease Service, Westmead Hospital
  • Sandra Barisic, Felicity Stehouwer, Terence McGill & Peter Kwong and the other outreach staff of the NSW Huntington Disease Service at Westmead Hospital
  • Lincoln Hopper, CEO of St Vincent’s Care Network
  • Dr Therese Alting and the HD Research Team at Westmead Hospital
  • John Conaghan, Huntington’s Social Worker, John Hunter Hospital
  • Blessy Merlin Joseph and the staff at Sister Maria Cunningham Centre, St Joseph’s Hospital

For information about previous years, please go to the ACNC website.