1800 244 735

Support, information and services for

Welcome to Huntington’s Australia

Huntington’s NSW ACT, along with the states of Queensland, SA/NT, Tasmania and WA merged on 1st October 2023 to become Huntington’s Australia! For our HD community, services provided by our NSW team will continue to operate seamlessly in the new entity and it is envisaged we will develop and grow as we benefit from a fully integrated national team. Please feel free to reach out to us by emailing [email protected] or phoning 1800 244 735.

What is Huntington’s Disease?

Huntington’s disease (HD) is a genetic neurodegenerative condition that affects the brain and nervous system. It can cause three types of symptoms including:

  • Involuntary movements, which can lead to problems with balance, walking and functioning;
  • Cognitive (or ‘Thinking’) symptoms, which can reduce a person’s memory impacting their ability to plan and multi-task; as well as impacting their ability to reason;
  • Behavioural symptoms, which can be seen as personality changes and/or actions that are out of character.

Each person with HD is affected differently. 

HD symptoms commonly appear in a person between the ages of 35 and 50, but it’s possible for them to appear at any age. There is currently no cure.

For more information about Huntington’s disease, please see our Resource Library and Research pages.