Huntington's NSW

1800 244 735

Helpline (02) 9874 9777

Our Support Services

Huntington’s NSW ACT offers four types of support services including NDIS Support Coordination, Youth Services, Therapy Services, and Support Groups. Please click on the links below, or scroll further down the page to search by audience, location or type of support.

NDIS Support Coordination

Youth Services

Therapy Services

Support Groups

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ACT Support group

Carers, Family & Friends, People Living with HD, Professionals
Calendar of events
This is a peer social group for anyone connected to a person living with HD in the ACT area.
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Wollongong 36+ Support Group

People Living with HD, Professionals
Calendar of events
This is a facilitated group for people with HD living in the Illawarra Shoalhaven area.
This group is online due to the latest COVID outbreak.
1st Monday of the month.
Registration is essential.
READ MORE >

Port Macquarie Family Support Group

Carers, Family & Friends, People Living with HD
Calendar of events
This group is in a transition stage. Seeking interest.
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Orange Family Support Group

Carers, Family & Friends, People Living with HD, Professionals
Calendar of events
This is a self-managed group for anyone connected to a person living with HD in the Orange area.
Meeting in person once again!
1st Saturday of the month.
Registration is essential.
READ MORE >

West Ryde Carer Support Group

Carers, Family & Friends
Calendar of events
This group is in a transition stage. Seeking interest.
READ MORE >

Newcastle Carer Support Group

Carers, Family & Friends
Calendar of events
This is a facilitated group for carers of people living with HD in the Hunter area.
Meeting in person once again!
2nd Thursday of the month.
Registration is essential.
READ MORE >

Featured Resource Library Articles

A Caregiver’s Handbook for Advanced-Stage Huntington Disease – Pollard, J. (ed.) 1999
The aim of this book is to familiarise carers with Huntington's disease, so that they can recognise its symptoms and know what to expect as it progresses.
It also includes general principles of care and tips that other carers have found useful.
READ MORE >

Isolation tips and support for young people and their families 
WORDS AMY HALE
As everything changes around us day by day, in ways most of us have never experienced before, we are feeling a lot of uncertainty – in our own lives, for our families, friends and for the world in general. In a situation like this, both the known and the unknown can cause increased levels of worry and stress, especially for those in families affected by Huntington’s disease who are already coping with a lot.
Access our Youth Connection counselling services.
READ MORE >

I’m a carer and I need a break…
WORDS GISELLE BEAUMONT
Carer respite is not covered in the NDIS. What words do I need to use when talking to the NDIS planner so that I can get some respite to help me to continue my caring role.
READ MORE >
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Huntington's NSW ACT Office

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Huntington’s NSW ACT acknowledges the Australian Aboriginal and Torres Strait Islander peoples as the first inhabitants of the nation and the traditional custodians of the lands where we live, learn and work.
Huntington’s NSW ACT is committed to embracing diversity and eliminating all forms of discrimination. Huntington’s NSW ACT welcomes all people irrespective of ethnicity, lifestyle choice, faith, sexual orientation and gender identity.

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