1800 244 735

Helpline (02) 9874 9777

Support Groups

ACT support

Family Support Group

This is a self-managed group that meet bi-monthly, usually for Saturday lunch.

It is attended by families from Canberra and surrounding areas.

We are most grateful to Karen who organises the lunches.

Click here to view the calendar of events.

Fundraising and awareness

Central Coast support

This region have been running since 2010. They are a great support and social network that meet up in different forms.

Carer Support Group

This is a self managed group meeting to share their ‘lived’ experience. Coffee and cake is also devoured.

It is for carers of a person living with HD in the Central Coast area.

The group meets the 3rd Saturday of the month (except January).

We are most grateful to Debra who organises and chairs the meetings.

Click here to view the calendar of events.

Family Support Group

Originally self-managed by the Faulkner family, this group is now under the auspices of the Association.

We are most grateful to Dianne who did organise and chair past meetings.

This group is a transition stage. Please contact us if your interested in join this group.

Fundraising and awareness

They are regular faces at the local Walk 4 Hope and their social connections assist with radio promotions, and editing the Walk 4 Hope promotional video.

Their affiliated social golf club turns on a fun annual Huntington’s day.

They also run memorable Wine and Shopping tours.

Hunter support

Newcastle Carer Support

This group is run by the social worker from John Hunter Hospital.

The group meets monthly to provide support and education for carers.

Click here to view the calendar of events.

Fundraising and awareness

Illawarra Shoalhaven Support

Wollongong 36+ Support

Originally managed by Ability Links, this group is now under the auspices of the Association.

This is a facilitated group for people with HD living in the Illawarra Shoalhaven area.

The group meets the 1st Monday of the month (except January).

Click here to view the calendar of events.

Mid North Coast support

Coffs Harbour Carer Support

Originally managed by Ability Links, this group is now under the auspices of the Association.

This is a facilitated group for carers of person living with HD in the Coffs Harbour area.

The group meets the 3rd Friday of the month (except January).

Click here to view the calendar of events.

Port Macquarie Family Support

Originally managed by Ability Links, this group is now under the auspices of the Association.

This is a facilitated group for anyone connected to a person living with HD in the Port Macquarie area.

The group meets the 1st Friday of the month (except January).

Click here to view the calendar of events.

Sydney Support

West Ryde Carer Support

This group is run by the social workers from Huntington Disease Service.

The group meets monthly to provide support and education for carers.

Click here to view the calendar of events.

Western NSW Support

Orange Family Support

This is a self-managed group for anyone connected to a person living with HD in the Orange & Central West area

The group meetings the 3rd Friday/Saturday of the month (except January).

We are most grateful to Rachael who organises and chairs the meetings.

Click here to view the calendar of events.

Fundraising and awareness

Rachael at HD Awareness Orange

Share on facebook
Share on twitter
Share on pinterest
Share on email

Welcome to our new website!

Please bear with us while we iron out the last minute wrinkles! If you have any feedback about our new site, please fill out the form below.