HUNTINGTON'S NEWS
We are recruiting – Fundraising & Events Coordinator
News published date: 4 August, 2023
Huntington’s Australia is a national leader in the delivery of services to support and empower people impacted by Huntington’s Disease (HD) to live their best life. We provide NDIS services, community education, individual and group capability building activities and advocacy at all levels. As part of the Business Development, Fundraising and Partnerships Team this role ... Read more
Merger date delayed for Huntington’s Australia
News published date: 8 June, 2023
As a valued member of the HD community, we’d like to keep you up to date with Huntington’s Australia (HA) developments. A summary of the article: Our NDIS registration is taking longer than expected and as such the merger date of 1 July has been postponed. The different associations are working together to share resources ... Read more
HUNTINGTON'S STORIES
HD Spotlight on Gabby Phillips
News published date: 22 November, 2022
The HD Spotlight on Gabby Phillips – Research Fellow and Community Advisory Committee member Q. How did you get into the HD world? I was at a crossroads in my career and someone close to me was diagnosed. I looked into the research in Australia and saw very little on Huntington’s disease, and I wanted ... Read more
Walk 4 Hope 2022 wrap up
News published date: 30 October, 2022
This year we were able to reintroduce our Walk 4 Hope events at Newcastle, Canberra, Orange and Parramatta. We also had a community walk in Bingara, thanks Veronica, and Wollongong, thanks Cram Foundation. I am very proud to announce that to date we have raised $77,286. Over the course of the four walks, we saw 500 ... Read more
Introducing Prof. Kenneth Serbin – guest speaker at AGM
News published date: 11 November, 2021
Kenneth P. Serbin’s mother Carol died of Huntington’s disease in 2006 after a 20-year battle against the disease. Serbin tested positive for the HD gene in 1999. His daughter Bianca tested negative for HD in the womb and is today a healthy 21-year-old college senior. Since 1998, Serbin has served as a volunteer advocate for ... Read more
Walk 4 Hope Virtual Launch
News published date: 23 August, 2021
This year we are again impacted by COVID-19 but still need you to Walk 4 Hope. With almost half of our income (excluding NDIS) coming from fundraising activities like the Walk 4 Hope, we are relying on you to register and show your support. The Walk 4 Hope is the difference between shrinking or growing ... Read more