Story articles

HD Spotlight on Gabby Phillips

Published date: 22 November, 2022

The HD Spotlight on Gabby Phillips – Research Fellow and Community Advisory Committee member Q. How did you get into the HD world? I was at a crossroads in my career and someone close to me was diagnosed. I looked into the research in Australia and saw very little on Huntington’s disease, and I wanted ... Read more

Walk 4 Hope 2022 wrap up

Published date: 30 October, 2022

This year we were able to reintroduce our Walk 4 Hope events at Newcastle, Canberra, Orange and Parramatta. We also had a community walk in Bingara, thanks Veronica, and Wollongong, thanks Cram Foundation. I am very proud to announce that to date we have raised $77,286. Over the course of the four walks, we saw 500 ... Read more

HD Spotlight on Jaime Bodiam

Published date: 7 April, 2022

Hear from Jaime Bodiam, community member and Juvenile HD mum, about her journey with HD, what barriers JHD families face, the importance of sharing stories and fundraising.

Introducing Prof. Kenneth Serbin – guest speaker at AGM

Published date: 11 November, 2021

Kenneth P. Serbin’s mother Carol died of Huntington’s disease in 2006 after a 20-year battle against the disease. Serbin tested positive for the HD gene in 1999. His daughter Bianca tested negative for HD in the womb and is today a healthy 21-year-old college senior. Since 1998, Serbin has served as a volunteer advocate for ... Read more

HD Spotlight on Amy Hale

Published date: 2 November, 2021

Here from our Youth Social Worker, Amy Hale, on why she became a social worker, how she got involved in the HD world and what her ideal Sunday is.

Walk 4 Hope Virtual Launch

Published date: 23 August, 2021

This year we are again impacted by COVID-19 but still need you to Walk 4 Hope. With almost half of our income (excluding NDIS) coming from fundraising activities like the Walk 4 Hope, we are relying on you to register and show your support. The Walk 4 Hope is the difference between shrinking or growing ... Read more

Walk 4 Hope 2021….. we remain hopeful

Published date: 19 July, 2021

Given the current COVID developments, we thought it important to provide you with an event update. We are still working towards our scheduled dates in September for Walk 4 Hope. We will continue to monitor the situation and work closely with the NSW Government in the lead up. If we are required to implement any ... Read more

A 4000km cycle to Broome

Published date: 19 April, 2021

Erica and Bill are about to set off on a cycle to Broome. Erica will be the support driver for her partner Bill as they cover over 4000km to reach Broome in June. We are so grateful that you have chosen to fundraise for us.

HD Spotlight on Robyn Russell

Published date: 22 March, 2021

Huntington's NSW ACT Board Member and Chair of the Community Advisory Committee shares her story with us. Read more here.

Introducing Associate Professor Elizabeth McCusker – guest speaker at AGM

Published date: 10 December, 2020

Huntington's NSW ACT invited Associate Professor Liz McCusker to be a special guest speaker at our 2020 Annual General Meeting. In acknowledgement of her retirement after so many years of service to the Huntington's community as a clinical and research leader we asked Josh Szeps to conduct the interview.

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Story articles

HD Spotlight on Gabby Phillips

Walk 4 Hope 2022 wrap up

HD Spotlight on Jaime Bodiam

Introducing Prof. Kenneth Serbin – guest speaker at AGM

HD Spotlight on Amy Hale

Walk 4 Hope Virtual Launch

Walk 4 Hope 2021….. we remain hopeful

A 4000km cycle to Broome

HD Spotlight on Robyn Russell

Introducing Associate Professor Elizabeth McCusker – guest speaker at AGM

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