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Story articles

A 4000km cycle to Broome

Published date: 19 April, 2021

Erica and Bill are about to set off on a cycle to Broome. Erica will be the support driver for her partner Bill as they cover over 4000km to reach Broome in June. We are so grateful that you have chosen to fundraise for us.

HD Spotlight on Robyn Russell

Published date: 22 March, 2021

Huntington's NSW ACT Board Member and Chair of the Community Advisory Committee shares her story with us. Read more here.

Hunt4Hope Op Shop

Published date: 17 November, 2020

The Hunt4Hope Shop is a self-funded business where Matina, the owner, chooses to give 100% of the profits to Huntington’s NSW ACT who helps those affected by Huntington’s Disease.

The HD spotlight on Kerryn and John Salmon

Published date: 7 April, 2020

WORDS John Salmon OAM
Huntington’s Disease and Physical Fitness
A lifetime of giving to the community.

90 years old and celebrating life

Published date: 7 April, 2020

90 years old and celebrating life The Matriarch of Team Haddy recently turned 90. Each year Team Haddy join us for the Walk 4 Hope at Parramatta and get together with many of their family members.


Published date: 7 April, 2020

because of Huntington's family supporters

HD Spotlight on Rachael Brooking

Published date: 11 December, 2019

Convenor HD Awareness Orange and Orange HD Support Group Community profile - Orange is leading awareness raising

The HD spotlight on… Dr Therese Alting

Published date: 26 September, 2019

Dr Therese Alting, PhD; Huntington’s NSW ACT Board Secretary

In Memory of Russell

Published date: 26 September, 2019

We were notified that our dear friend Russell goodwin sadly passed away in june. Russell was always a bit of a larrikin who loved to be in the thick of things whether playing uno, bowls, footy tipping com- petitions ortelling us his big fishing tales. one such tale was when he chatted up two young ... Read more

HD Spotlight on John Conaghan

Published date: 19 June, 2019

SOCIAL WORKER Hunter HD Service, John Hunter Hospital, Newcastle NSW Q. Why did you decide to become a social worker? A.  I think I had been pondering for a while about what to do with my life. I liked the humanities at uni and it probably grew from there. I also think that various life ... Read more