1800 244 735

Helpline (02) 9874 9777

HD Spotlight on Gabby Phillips

The HD Spotlight on Gabby Phillips – Research Fellow and Community Advisory Committee member

Q. How did you get into the HD world?

I was at a crossroads in my career and someone close to me was diagnosed. I looked into the research in Australia and saw very little on Huntington’s disease, and I wanted to contribute.

Q. Why did you become a Community Advisory Member?

I wanted to support people living with and caring for people with Huntington’s. My work can be very science-focused, and I always like to bring it back to the people.

Q. What is the best part about working with HD families?

Being reminded of the people behind the disease and why we need to develop better options for these people is the most important part. I’ve been very surprised in my life at the people I’ve met with HD, all around me, but I’d never know it unless I started a conversation about my work with them first. It feels very special to know them.

Q. What keeps you enthusiastic about your job?

Again it all about those outcomes for people with HD. The hopeful prize at the end of our work is having a real effect; saying to someone ‘You have Huntington’s, here’s a treatment option for you.’  Research will make that difference and we never know when we’ll find something!

Q. What is your ideal Sunday?

Morning markets and an afternoon cooking with a glass of wine 🙂. Slow Sundays are perfect!



Latest News and Stories

donate scene cartoon

We are recruiting – Support Services Administrator

Published date: 2 February, 2023

We have created a new position for an enthusiastic and committed person wanting to be part of an inclusive and supportive team in a growing NDIS specialist business and specialised programs, supporting people living with Huntington’s disease (HD) and their families. In this part-time role you will be responsible for providing administration support to a ... Read more

CEO announcement for Huntington’s Australia

Published date: 16 January, 2023

Following the recent announcement about State Association memberships agreeing to proceed with a national merger, Huntington’s Australia (HA) has appointed a new CEO to lead the new association. Lenni Duffield, from Huntington’s WA, has been unanimously endorsed by the HA Board as the inaugural CEO of Huntington’s Australia. Lenni has held senior roles and provided ... Read more

Members have agreed to merge into a new, single entity, Huntington’s Australia

Published date: 6 December, 2022

We’ve got some great news to share! Members of five State and Territory organisations (Queensland, NSW ACT, Tasmania, SA&NT and WA) have agreed to merge into a new, single entity, Huntington’s Australia (HA). We are all very excited about the opportunities this will provide to the Huntington’s community. The merger will bring together five associations ... Read more
HD news image

HD News Spring 2022

Published date: 22 November, 2022

Download your copy of HD News Spring edition by clicking on the link. Some of the highlights in this edition are: Information on the proposed merger Growth of our NDIS team Walk 4 Hope wrap up Youth Connection program update and some exciting news We hope that you enjoy this edition of HD News. If you ... Read more

Awarded for the Association Turnaround of the Year

Published date: 10 November, 2022

The Association Awardsᵀᴹ recognise excellence and accomplishment by associations and outstanding individuals. In addition to recognition, the process of nominating for an Award will be a worthwhile experience as it will encourage associations to consider the factors that make a successful association, turnaround or campaign.
APDA logo

APDA – The Good, The Bad & The Hack

Published date: 10 October, 2022

Huntington's NSW ACT is a member of The Accessible Product Design Alliance (APDA), which is a group of not-for-profit consumer health organisations working together to represent people with chronic conditions who are significantly impacted by inaccessible products and packaging. This campaign aims for those living with a disability to share their experience of different products to raise awareness of accessible and inaccessible experiences, support others to make their lives easier and help us educate product and packaging manufactures about what they need to improve.