1800 244 735

Helpline (02) 9874 9777

HD Spotlight on Gabby Phillips

The HD Spotlight on Gabby Phillips – Research Fellow and Community Advisory Committee member

Q. How did you get into the HD world?

I was at a crossroads in my career and someone close to me was diagnosed. I looked into the research in Australia and saw very little on Huntington’s disease, and I wanted to contribute.

Q. Why did you become a Community Advisory Member?

I wanted to support people living with and caring for people with Huntington’s. My work can be very science-focused, and I always like to bring it back to the people.

Q. What is the best part about working with HD families?

Being reminded of the people behind the disease and why we need to develop better options for these people is the most important part. I’ve been very surprised in my life at the people I’ve met with HD, all around me, but I’d never know it unless I started a conversation about my work with them first. It feels very special to know them.

Q. What keeps you enthusiastic about your job?

Again it all about those outcomes for people with HD. The hopeful prize at the end of our work is having a real effect; saying to someone ‘You have Huntington’s, here’s a treatment option for you.’  Research will make that difference and we never know when we’ll find something!

Q. What is your ideal Sunday?

Morning markets and an afternoon cooking with a glass of wine 🙂. Slow Sundays are perfect!

 

 

Latest News and Stories

We are so close to merging into Huntington’s Australia

Published date: 14 September, 2023

We are now only a matter of weeks away from commencing business as Huntington’s Australia (HA). It has been an enormous effort from so many people to get us to this stage, where we are standing on the precipice of a new, interconnected, national approach to providing supports and services to the Australian HD community.

We are recruiting – Fundraising & Events Coordinator

Published date: 4 August, 2023

Huntington’s Australia is a national leader in the delivery of services to support and empower people impacted by Huntington’s Disease (HD) to live their best life. We provide NDIS services, community education, individual and group capability building activities and advocacy at all levels. As part of the Business Development, Fundraising and Partnerships Team this role ... Read more
HD news image

HD News Winter 2023

Published date: 31 July, 2023

Download your copy of HD News Winter edition by clicking on the link. Some of the highlights in this edition are Introduction to our HD Youth Specialist and program update, HD Awareness Month and the High Tea 4 HD, an update on the progress of Huntington's Australia, dates and registration details for Walk 4 Hope.
donate scene cartoon

We are recruiting – HD Specialist

Published date: 5 July, 2023

Huntington’s NSW ACT is the peak body representing the Huntington’s community in NSW and the ACT. We support people affected by Huntington’s Disease (HD) to live their best possible life, while striving to eliminate the factors that make our organisation necessary. We provide leadership in Huntington’s disease information, education, awareness, support and advocacy. 

Merger date delayed for Huntington’s Australia

Published date: 8 June, 2023

As a valued member of the HD community, we’d like to keep you up to date with Huntington’s Australia (HA) developments. A summary of the article: Our NDIS registration is taking longer than expected and as such the merger date of 1 July has been postponed. The different associations are working together to share resources ... Read more

An update on all things Huntington’s Australia

Published date: 29 March, 2023

As a valued member of the HD community, we’d like to keep you up to date with Huntington’s Australia (HA) developments. The merger implementation is in full swing and just about everyone is getting involved in some way, shape or form. All staff are in the process of having discussions with our CEO, Lenni, and our HR Specialist, Lyn, about transitioning into the new HA organisation. We are still expecting that most of the staff employed by State Associations will transfer to HA. In addition to our CEO, we now also have another two of the senior management team selected, and both are starting this month - Leah Atkinson as the Head of Finance and Corporate Services and Basil Mabuza as the Head of Community Programs and Services.