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Walk 4 Hope Virtual Launch

This year we are again impacted by COVID-19 but still need you to Walk 4 Hope. With almost half of our income (excluding NDIS) coming from fundraising activities like the Walk 4 Hope, we are relying on you to register and show your support. The Walk 4 Hope is the difference between shrinking or growing our programs.

The #Walk4Hope2021 is going virtual. The best part is that you can participate from wherever you are! The dates have been set, let’s be seen – wear pink and green.

  • Canberra Sunday 12 September
  • Orange Saturday 18 September
  • Speers Point Sunday 19 September
  • Parramatta Sunday 26 September

Even though we are physically unable to get together it is important that we keep active and create awareness of HD in our own neighbourhoods. You may like to set yourself a distance challenge, maybe the 4km walk that you registered for or maybe 40km throughout the month. Perhaps you can set a challenge with a friend or family member and compete virtually.

All registrations are tax deductible this year, and we need you to get your contacts going to support your charity.

Fees for the Walk

  • Family (2 adults and 2 children) $50
  • Adult (18+ years) $25
  • Child (4 to 17 years) $10
  • Infant (0 to 3 years) complimentary

Distance for the Walk

Now that we are virtual there is no limit on how far you walk. You can walk the 4km, as planned, or you can walk 10km or even 40km throughout the month of September. We have set a goal of 100 walkers doing 4km each. But let’s see if we can beat that.

How can I participate?

  • Register to Walk 4 Hope and support families affected by HD
  • Donate to Walk 4 Hope and support a person doing the walk
  • Contact us to purchase Walk 4 Hope merchandise. We have shirts, hats, drink bottles and pins.

Latest News and Stories

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We are recruiting – NDIS Support Coordinator

Published date: 3 April, 2023

Huntington’s NSW ACT provides services and advocacy to improve the lives of Australians impacted by Huntington’s disease and other disabilities under the National Disability Insurance Scheme (NDIS). Under the banner and leadership of Huntington’s NSW ACT, this role works with the Huntington’s Queensland team, to provide support to people with Huntington’s disease (HD) in Queensland, to activate and manage their NDIS plans and engage with a range of mainstream and disability providers to optimise outcomes and achieve their NDIS plan goals.

An update on all things Huntington’s Australia

Published date: 29 March, 2023

As a valued member of the HD community, we’d like to keep you up to date with Huntington’s Australia (HA) developments. The merger implementation is in full swing and just about everyone is getting involved in some way, shape or form. All staff are in the process of having discussions with our CEO, Lenni, and our HR Specialist, Lyn, about transitioning into the new HA organisation. We are still expecting that most of the staff employed by State Associations will transfer to HA. In addition to our CEO, we now also have another two of the senior management team selected, and both are starting this month - Leah Atkinson as the Head of Finance and Corporate Services and Basil Mabuza as the Head of Community Programs and Services.
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HD News Autumn 2023

Published date: 23 March, 2023

Download your copy of HD News Autumn edition by clicking on the link. Some of the highlights in this edition are: Introduction to our counselling service Youth education scholarships Appointment of a CEO for Huntington’s Australia We hope that you enjoy this edition of HD News. If you have any feedback or would like to get in ... Read more

Ailsa’s Legacy – HD Education Scholarship

Published date: 17 March, 2023

We are excited to announce that applications for the 2023 Ailsa’s Legacy Youth Scholarships are now open and invite all children and young people in our HD community needing assistance to start, continue, or return to education in 2023 to apply. We have a number of individual grants available this year of up to $2000 each for children and young people living with an HD affected parent or carer. These grants can be spent on anything that makes accessing education easier and more likely such as course or school fees, uniforms and shoes, computers, IT and software, school camps, school sports, extra tuition, extracurricular activities, transport, accommodation, and more.
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NAA pre-budget submission for the 2023-24 Federal Budget

Published date: 6 March, 2023

The Neurological Alliance Australia * (NAA) is pleased to provide a pre-Budget submission to the Australian Government for the 2023-2024 Budget. This submission focusses on four key areas that will impact people affected by the conditions represented by the members of the NAA.

HD Heroes book release

Published date: 6 March, 2023

Huntington’s Disease Heroes includes stories from a scientist who switched from cancer research to studying Huntington’s after finding out her mother had tested positive for the disease, a young man whose biggest fear was testing gene negative and not inheriting the disease, and a woman who grew up in survival mode, unable to express her grief. We learn about the ways their lives are better off because of the hardships they have faced. By sharing these intimate parts of their lives, they are taking away the fear and stigma of living with Huntington’s in their families. They are giving a voice to this unheard rare disease community and empowering others to speak up.