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Walk 4 Hope Virtual Launch

This year we are again impacted by COVID-19 but still need you to Walk 4 Hope. With almost half of our income (excluding NDIS) coming from fundraising activities like the Walk 4 Hope, we are relying on you to register and show your support. The Walk 4 Hope is the difference between shrinking or growing our programs.

The #Walk4Hope2021 is going virtual. The best part is that you can participate from wherever you are! The dates have been set, let’s be seen – wear pink and green.

  • Canberra Sunday 12 September
  • Orange Saturday 18 September
  • Speers Point Sunday 19 September
  • Parramatta Sunday 26 September

Even though we are physically unable to get together it is important that we keep active and create awareness of HD in our own neighbourhoods. You may like to set yourself a distance challenge, maybe the 4km walk that you registered for or maybe 40km throughout the month. Perhaps you can set a challenge with a friend or family member and compete virtually.

All registrations are tax deductible this year, and we need you to get your contacts going to support your charity.

Fees for the Walk

  • Family (2 adults and 2 children) $50
  • Adult (18+ years) $25
  • Child (4 to 17 years) $10
  • Infant (0 to 3 years) complimentary

Distance for the Walk

Now that we are virtual there is no limit on how far you walk. You can walk the 4km, as planned, or you can walk 10km or even 40km throughout the month of September. We have set a goal of 100 walkers doing 4km each. But let’s see if we can beat that.

How can I participate?

  • Register to Walk 4 Hope and support families affected by HD
  • Donate to Walk 4 Hope and support a person doing the walk
  • Contact us to purchase Walk 4 Hope merchandise. We have shirts, hats, drink bottles and pins.

Latest News and Stories

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We are recruiting – Support Services Administrator

Published date: 2 February, 2023

We have created a new position for an enthusiastic and committed person wanting to be part of an inclusive and supportive team in a growing NDIS specialist business and specialised programs, supporting people living with Huntington’s disease (HD) and their families. In this part-time role you will be responsible for providing administration support to a ... Read more

CEO announcement for Huntington’s Australia

Published date: 16 January, 2023

Following the recent announcement about State Association memberships agreeing to proceed with a national merger, Huntington’s Australia (HA) has appointed a new CEO to lead the new association. Lenni Duffield, from Huntington’s WA, has been unanimously endorsed by the HA Board as the inaugural CEO of Huntington’s Australia. Lenni has held senior roles and provided ... Read more

Members have agreed to merge into a new, single entity, Huntington’s Australia

Published date: 6 December, 2022

We’ve got some great news to share! Members of five State and Territory organisations (Queensland, NSW ACT, Tasmania, SA&NT and WA) have agreed to merge into a new, single entity, Huntington’s Australia (HA). We are all very excited about the opportunities this will provide to the Huntington’s community. The merger will bring together five associations ... Read more
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HD News Spring 2022

Published date: 22 November, 2022

Download your copy of HD News Spring edition by clicking on the link. Some of the highlights in this edition are: Information on the proposed merger Growth of our NDIS team Walk 4 Hope wrap up Youth Connection program update and some exciting news We hope that you enjoy this edition of HD News. If you ... Read more

Awarded for the Association Turnaround of the Year

Published date: 10 November, 2022

The Association Awardsᵀᴹ recognise excellence and accomplishment by associations and outstanding individuals. In addition to recognition, the process of nominating for an Award will be a worthwhile experience as it will encourage associations to consider the factors that make a successful association, turnaround or campaign.
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APDA – The Good, The Bad & The Hack

Published date: 10 October, 2022

Huntington's NSW ACT is a member of The Accessible Product Design Alliance (APDA), which is a group of not-for-profit consumer health organisations working together to represent people with chronic conditions who are significantly impacted by inaccessible products and packaging. This campaign aims for those living with a disability to share their experience of different products to raise awareness of accessible and inaccessible experiences, support others to make their lives easier and help us educate product and packaging manufactures about what they need to improve.