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Walk 4 Hope 2022 wrap up

This year we were able to reintroduce our Walk 4 Hope events at Newcastle, Canberra, Orange and Parramatta. We also had a community walk in Bingara, thanks Veronica, and Wollongong, thanks Cram Foundation. I am very proud to announce that to date we have raised $77,286.

Over the course of the four walks, we saw 500 people attend and walk! There were over 120 people actively fundraising online through their own networks and families! Our top 10 fundraisers raised a massive $30,120. What an outstanding achievement by everyone considering we’ve been in and out of lockdown since our last walk in 2019.

  1. Craze family
  2. Team Haddy
  3. Team Bingara
  4. Walk 4 Jo
  5. Team Smith
  6. David family
  7. Paul Brothers
  8. Team Sharp
  9. Walk 4 Dan
  10. Anna’s Amazing Ambulators

A very big thank you to all the businesses who donated prizes for our raffles. Also, thank you to our suppliers who provided us with food, beverages and entertainment at each event. Lastly a special mention to our volunteers who came and set-up and helped with the running of the day; without you we would not have been able to make the days happen.

  • Lions Club of Warners Bay
  • Kape Nueva
  • Craft Unfolded
  • Mark Lee entertainment
  • Hampers with Bite
  • Broken Bean
  • Willow Grove accommodation
  • EJ_EH Holder Club of ACT
  • Coffee Loco
  • Dickson Aquatic Centre
  • Capital Country Holiday Park
  • DECO Hotel
  • Vikings Group
  • Parramatta Lions Club
  • Screaming Beans
  • Jack Sharp Magic
  • Entertainment by Bella and Tom
  • Coles Myer
  • Coca-Cola Amital
  • Rotary Club of Orange
  • Orange Tribal Fusion Dance Group

Latest News and Stories

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We are recruiting – NDIS Support Coordinator

Published date: 3 April, 2023

Huntington’s NSW ACT provides services and advocacy to improve the lives of Australians impacted by Huntington’s disease and other disabilities under the National Disability Insurance Scheme (NDIS). Under the banner and leadership of Huntington’s NSW ACT, this role works with the Huntington’s Queensland team, to provide support to people with Huntington’s disease (HD) in Queensland, to activate and manage their NDIS plans and engage with a range of mainstream and disability providers to optimise outcomes and achieve their NDIS plan goals.

An update on all things Huntington’s Australia

Published date: 29 March, 2023

As a valued member of the HD community, we’d like to keep you up to date with Huntington’s Australia (HA) developments. The merger implementation is in full swing and just about everyone is getting involved in some way, shape or form. All staff are in the process of having discussions with our CEO, Lenni, and our HR Specialist, Lyn, about transitioning into the new HA organisation. We are still expecting that most of the staff employed by State Associations will transfer to HA. In addition to our CEO, we now also have another two of the senior management team selected, and both are starting this month - Leah Atkinson as the Head of Finance and Corporate Services and Basil Mabuza as the Head of Community Programs and Services.
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HD News Autumn 2023

Published date: 23 March, 2023

Download your copy of HD News Autumn edition by clicking on the link. Some of the highlights in this edition are: Introduction to our counselling service Youth education scholarships Appointment of a CEO for Huntington’s Australia We hope that you enjoy this edition of HD News. If you have any feedback or would like to get in ... Read more

Ailsa’s Legacy – HD Education Scholarship

Published date: 17 March, 2023

We are excited to announce that applications for the 2023 Ailsa’s Legacy Youth Scholarships are now open and invite all children and young people in our HD community needing assistance to start, continue, or return to education in 2023 to apply. We have a number of individual grants available this year of up to $2000 each for children and young people living with an HD affected parent or carer. These grants can be spent on anything that makes accessing education easier and more likely such as course or school fees, uniforms and shoes, computers, IT and software, school camps, school sports, extra tuition, extracurricular activities, transport, accommodation, and more.
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NAA pre-budget submission for the 2023-24 Federal Budget

Published date: 6 March, 2023

The Neurological Alliance Australia * (NAA) is pleased to provide a pre-Budget submission to the Australian Government for the 2023-2024 Budget. This submission focusses on four key areas that will impact people affected by the conditions represented by the members of the NAA.

HD Heroes book release

Published date: 6 March, 2023

Huntington’s Disease Heroes includes stories from a scientist who switched from cancer research to studying Huntington’s after finding out her mother had tested positive for the disease, a young man whose biggest fear was testing gene negative and not inheriting the disease, and a woman who grew up in survival mode, unable to express her grief. We learn about the ways their lives are better off because of the hardships they have faced. By sharing these intimate parts of their lives, they are taking away the fear and stigma of living with Huntington’s in their families. They are giving a voice to this unheard rare disease community and empowering others to speak up.