Being impacted by Huntington’s disease can make life really hard. Especially when you’re young and coming to terms with it all. Our Huntington’s NSW ACT Youth Connection Program is here to help!
Our youth worker can visit you at home, at school or anywhere else you like. We can talk with you about things that might be worrying or difficult for you. We can help you understand HD better and answer all of your big and small questions. If you’re out of town or prefer to be somewhere by yourself we can talk online too.
We can help you learn new ways to cope and give you some ideas to try when things get hard. We can invite you to our camps and events so you can meet other young people from HD families to share your stories, worries and experiences while doing cool things together.
We can talk to your teachers too if you say that’s OK, and find some ways to make school a little easier for you. We can also talk to your Mum, Dad, carer or anyone close to you to help them understand how HD might be making things harder for you and how they can help.
We’re also here to help parents and carers understand more about Huntington’s and how they have better conversations about it with their kids and young people. We offer a range of parenting support including parent counselling and access to some great HD resources for coping with these extra challenges.
Follow our links below or hit the big ‘Contact our Youth Worker’ button above to find out more.