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Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial

Published date: 29 September, 2022

SELECT-HD (NCT05032196) is an adaptive trial designed to rapidly optimize dose level and frequency based on early indicators of target engagement. The trial update announced today is being driven by the observation of reductions of mutant huntingtin (mHTT) protein in cerebrospinal fluid (CSF) after study participants received either a single 30 or 60 mg dose ... Read more
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HD News Winter 2022

Published date: 1 August, 2022

This is your downloadable copy of the HD News Winter 2022 edition. In this edition you'll be able to read up on the Walk 4 Hope and how to register, HDNA and the map-HD registry and more.
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Summer Foundation report on effective housing and support models

Published date: 19 July, 2022

People with Huntington’s disease require high levels of specialised care in order for them to manage daily living tasks. Specialised housing for people with Huntington’s disease in Australia is limited. This is in part due to a lack of funding and in part due to a lack of appropriate facilities. For many people, this means that their only option is to live in residential aged care (RAC). Living in RAC is generally not appropriate given that the environment often has a lack of age-appropriate activities, and social interaction.
Tax Appeal 2022

Tax Appeal – help Brendan get specialist support

Published date: 14 June, 2022

The end of the financial year is just around the corner, and we need your help. You can support the valuable work of Huntington’s NSW ACT by kindly making a tax-deductible donation before June 30. Your donations will help our team connect and care for individuals and families affected by Huntington’s Disease across NSW and the ACT.
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Join the Map-HD Registry today

Published date: 30 May, 2022

Please join with the HDNA as we work toward facilitating the best quality of life for every Australian affected by Huntington’s Disease (HD). Now more than ever, research teams and companies across the globe are testing possible treatments for Huntington’s Disease.
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NAA seeks commitments for the 2022 Federal Election

Published date: 10 May, 2022

The Neurological Alliance Australia (NAA) seeks commitments from parties and candidates for the upcoming Federal Election to address the urgent needs of adults and children living with neurological diseases in Australia.  
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HD NZ Conference Information

Published date: 10 May, 2022

The Huntington’s Disease Associations of New Zealand invite members, non-members, families and healthcare professionals to attend their conference on June 10 and 11. There is an online option if you are interested in finding out more visit their website.
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HD News Autumn 2022

Published date: 8 March, 2022

Download your copy of HD News Autumn 2022 here. We hope that you enjoy reading the latest news from Huntington's NSW ACT. If you have any questions or feedback please contact us at the office.

Professor Elizabeth McCusker awarded OAM

Published date: 27 January, 2022

We are delighted to share that Professor Elizabeth McCusker has been awarded OAM by the Governor-General in the Australia Day 2022 Honours List. Prof McCusker was awarded OAM for her service to medicine as a neurologist, particularly in the field of Huntington's disease.
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Roche to continue tominersen research with new Phase II trial for early stage HD

Published date: 19 January, 2022

Based on findings from the GENERATION HD1 study in adults with manifest HD, Roche has announced that the tominersen research program will continue with a new Phase II trial. Roche-Genentech-HD-Global-Community-Letter-January-2022   Two information sessions have been scheduled to provide more information. See details below.   Huntington’s Disease Society of America Thursday 20th January at 3pm ... Read more