1800 244 735

Helpline (02) 9874 9777

Neurological Alliance Australia – Statement on Expanded Telehealth

The Neurological Alliance Australia has today issued a Joint Position Statement calling on the Australian Government to permanently extend the amendments made to MBS telehealth items introduced in response to the COVID-19 pandemic. These supports are currently scheduled to cease after 30 September 2020.  The members of the NAA, representing adults and children living with progressive neurological or neuro-muscular diseases in Australia believe strongly that telehealth offers the health system, both public and private, the opportunity to provide enhanced options for safe care for this vulnerable population and new models of efficient care for the whole population.

Lewis Kaplan, CEO of Huntington’s NSW ACT said that, “Telehealth should be permanently embedded into the health system to maintain improved accessibility, flexibility and safety in the health care system for the most vulnerable, particularly those with the kinds of progressive neurological or neuro-muscular conditions that we represent”.

CLICK HERE to read the Joint Position Statement in full.

Share on facebook
Share on twitter
Share on pinterest
Share on email

Latest News and Stories

Update on research from Dr Therese Alting

Published date: 1 December, 2021

2021 has been a tough year, and for the HD community, it wasn’t just COVID-19. So many people around the world had their hopes pinned on the ground-breaking Huntingtin-lowering drug trials that were underway. Dr Therese Alting, board member of Huntington's NSW ACT and Clinical Neuropsychologist at Concord and Westmead Hospitals, gives an easy to read update.
Hoping Machine documentary by Charles Sabine

CHDI Foundation Postcards

Published date: 15 November, 2021

The Postcards are a series of short videos aimed at non-scientists that convey the major themes, scientific breakthroughs, and clinical trial updates from each year’s Huntington’s Disease.

Introducing Prof. Kenneth Serbin – guest speaker at AGM

Published date: 11 November, 2021

Kenneth P. Serbin’s mother Carol died of Huntington’s disease in 2006 after a 20-year battle against the disease. Serbin tested positive for the HD gene in 1999. His daughter Bianca tested negative for HD in the womb and is today a healthy 21-year-old college senior. Since 1998, Serbin has served as a volunteer advocate for ... Read more

HD Spotlight on Amy Hale

Published date: 2 November, 2021

Here from our Youth Social Worker, Amy Hale, on why she became a social worker, how she got involved in the HD world and what her ideal Sunday is.

HD News Spring 2021

Published date: 1 November, 2021

Download your copy of the HD News Spring 2021 here. We hope that you enjoy reading the latest news from Huntington's NSW ACT. If you have any feedback or questions please contact us at the office.
Carer opening a care hamper

Celebrating National Carers week

Published date: 28 October, 2021

Thank you @CarersNSW Our Carer Support groups received a donation from CarersNSW to help celebrate National Carers week (Sunday 10th Oct-Sat 16th Oct). Each region was planning to host an event for their Carer group but unfortunately COVID hijacked these plans. Instead carers of the Port Macquarie and Wollongong Support groups received a phone call, ... Read more