Could you become a Board Member of Huntington’s NSW ACT? Or even the Chairperson?
With our sister organisations in Canada, the UK and some parts of North America, Huntington’s NSW started as a small group of people in the mid-1970s who were determined to bring Huntington’s disease (HD) “Out of the Darkness”, to bring together isolated families and advocate for their needs. We added the ACT to our organisation in 2017.
In 2020 we are facing a different set of challenges, not to mention a worldwide pandemic. There are now many kinds of services and we’ve come a long way. But as anyone from a HD family knows, there is still so much more that could be done to support people in their everyday lives and to raise awareness of this still misunderstood disease.
Our Association is currently recruiting three Board Members and also a new Chairperson as the incumbent is retiring after many years of dedicated service. We are looking for people who are passionate about helping our organisation better serve the HD community. To do this, we need to remain financially viable in a very difficult time for not-for-profit organisations like ourselves.
Experience in fund-raising, financial management or previous Board experience is desirable, but we are mostly looking for hard-working people who will use their experience to help the Association achieve its goals. You can find more specific details of the roles in the Position Descriptions of both Chairperson and Board Member. (Click on the relevant words in the previous sentence to download these.)
The Board meets 9-10 times per year, mostly monthly, currently on the 2nd Tuesday evening of the month. Our CEO circulates items for the meeting, and it is expected that you will have read the documents prior to the meeting, in order to contribute. In our Board meetings we aim to create a congenial atmosphere while getting through the many tasks as efficiently as we can.
This role is unpaid, but current and former Board members will agree that their experience has given them great satisfaction. Please consider coming to join us.
Contact: Lewis Kaplan, CEO, to discuss the organisation and the roles
Mobile: 0407 108 667
Deadline: 23 September with CV and brief covering letter
Send to: [email protected]