Spring 2020 newsletter

Article published date:
21 October, 2020
Author:
huntington_admin

Download your copy of the HD News Spring 2020 edition.

Highlights;

Notice of 2020 Annual General Meeting – 21 November
Walk 4 Hope 2020
Community Survey 2020
NDIS – Thinking about your next plan
Spotlight – HD Service Clinical Nurse Consultant
Research – Gut health & Huntington’s link
What’s Happening – October to December

Latest News and Stories

Update on research from Dr Therese Alting

Published date: 1 December, 2021

2021 has been a tough year, and for the HD community, it wasn’t just COVID-19. So many people around the world had their hopes pinned on the ground-breaking Huntingtin-lowering drug trials that were underway. Dr Therese Alting, board member of Huntington's NSW ACT and Clinical Neuropsychologist at Concord and Westmead Hospitals, gives an easy to read update.

Hoping Machine documentary by Charles Sabine

CHDI Foundation Postcards

Published date: 15 November, 2021

The Postcards are a series of short videos aimed at non-scientists that convey the major themes, scientific breakthroughs, and clinical trial updates from each year’s Huntington’s Disease.

Introducing Prof. Kenneth Serbin – guest speaker at AGM

Published date: 11 November, 2021

Kenneth P. Serbin’s mother Carol died of Huntington’s disease in 2006 after a 20-year battle against the disease. Serbin tested positive for the HD gene in 1999. His daughter Bianca tested negative for HD in the womb and is today a healthy 21-year-old college senior. Since 1998, Serbin has served as a volunteer advocate for ... Read more

HD Spotlight on Amy Hale

Published date: 2 November, 2021

Here from our Youth Social Worker, Amy Hale, on why she became a social worker, how she got involved in the HD world and what her ideal Sunday is.

HD News Spring 2021

Published date: 1 November, 2021

Download your copy of the HD News Spring 2021 here. We hope that you enjoy reading the latest news from Huntington's NSW ACT. If you have any feedback or questions please contact us at the office.

Celebrating National Carers week

Published date: 28 October, 2021

Thank you @CarersNSW Our Carer Support groups received a donation from CarersNSW to help celebrate National Carers week (Sunday 10th Oct-Sat 16th Oct). Each region was planning to host an event for their Carer group but unfortunately COVID hijacked these plans. Instead carers of the Port Macquarie and Wollongong Support groups received a phone call, ... Read more

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Huntington's NSW ACT Office

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Huntington’s NSW ACT acknowledges the Australian Aboriginal and Torres Strait Islander peoples as the first inhabitants of the nation and the traditional custodians of the lands where we live, learn and work.
Huntington’s NSW ACT is committed to embracing diversity and eliminating all forms of discrimination. Huntington’s NSW ACT welcomes all people irrespective of ethnicity, lifestyle choice, faith, sexual orientation and gender identity.

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