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Spring 2020 newsletter

Download your copy of the HD News Spring 2020 edition.


  • Notice of 2020 Annual General Meeting – 21 November
  • Walk 4 Hope 2020
  • Community Survey 2020
  • NDIS – Thinking about your next plan
  • Spotlight – HD Service Clinical Nurse Consultant
  • Research – Gut health & Huntington’s link
  • What’s Happening – October to December
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Latest News and Stories

GSNV Wellness Week 2020

5 Days of Wellness webinars

Published date: 9 November, 2020

Our partnership with GSNV provides an opportunity to get access to a week of events organised to support people in Genetic Support Groups. Wellness Week (November 16th-20th) offers activities for Supporting the supporters. To learn more about the FREE activities and to RSVP for one or two (or three based on availability!), please find the ... Read more
Person taking notes at a meeting

Community Survey 2020

Published date: 21 October, 2020

We’d really value your input to help guide our decision-making.
Person using a computer

Spring 2020 newsletter

Published date: 21 October, 2020

Read our HD News Spring 2020 edition.

Walk 4 Hope Speers Point update

Published date: 8 September, 2020

But we are asking you to still register and walk your way, anywhere, anytime.
young board members

We are recruiting Board Members

Published date: 26 August, 2020

Could you become a Board Member of Huntington’s NSW ACT? Or even the next Chairperson?

Our submission to the Disability Royal Commission

Published date: 29 July, 2020

Five Huntington’s state associations have collaborated on a submission to the Disability Royal Commission. You can download and read the submission HERE.

Welcome to our new website!

Please bear with us while we iron out the last minute wrinkles! If you have any feedback about our new site, please fill out the form below.