Huntington's NSW

1800 244 735

Prof Elizabeth McCusker interview

Prof Elizabeth McCusker kindly agreed to be interviewed as special guest speaker at our 2020 annual general meeting to recognise her retirement after many years as both a clinical and research leader.

For those who missed this interview, generously conducted by Josh Szeps, it is now available on YouTube here.

 

Acknowledgement

I acknowledge all those who contributed to the development of the Huntington Disease service with great dedication to their many roles and who continue to do so.

I acknowledge the courageous families and the many who give support including the HD Associations and those who often voluntarily form a network of service and care.

Elizabeth McCusker, November 2020

 

Josh Szeps is a radio and TV broadcaster currently heard on ABC Radio Sydney.
His podcast is “Uncomfortable Conversations with Josh”.

Latest News and Stories

We are so close to merging into Huntington’s Australia

Published date: 14 September, 2023

We are now only a matter of weeks away from commencing business as Huntington’s Australia (HA). It has been an enormous effort from so many people to get us to this stage, where we are standing on the precipice of a new, interconnected, national approach to providing supports and services to the Australian HD community.
READ MORE >

We are recruiting – Fundraising & Events Coordinator

Published date: 4 August, 2023

Huntington’s Australia is a national leader in the delivery of services to support and empower people impacted by Huntington’s Disease (HD) to live their best life. We provide NDIS services, community education, individual and group capability building activities and advocacy at all levels. As part of the Business Development, Fundraising and Partnerships Team this role ... Read more
READ MORE >
HD news image

HD News Winter 2023

Published date: 31 July, 2023

Download your copy of HD News Winter edition by clicking on the link. Some of the highlights in this edition are Introduction to our HD Youth Specialist and program update, HD Awareness Month and the High Tea 4 HD, an update on the progress of Huntington's Australia, dates and registration details for Walk 4 Hope.
READ MORE >
donate scene cartoon

We are recruiting – HD Specialist

Published date: 5 July, 2023

Huntington’s NSW ACT is the peak body representing the Huntington’s community in NSW and the ACT. We support people affected by Huntington’s Disease (HD) to live their best possible life, while striving to eliminate the factors that make our organisation necessary. We provide leadership in Huntington’s disease information, education, awareness, support and advocacy. 
READ MORE >

Merger date delayed for Huntington’s Australia

Published date: 8 June, 2023

As a valued member of the HD community, we’d like to keep you up to date with Huntington’s Australia (HA) developments. A summary of the article: Our NDIS registration is taking longer than expected and as such the merger date of 1 July has been postponed. The different associations are working together to share resources ... Read more
READ MORE >

An update on all things Huntington’s Australia

Published date: 29 March, 2023

As a valued member of the HD community, we’d like to keep you up to date with Huntington’s Australia (HA) developments. The merger implementation is in full swing and just about everyone is getting involved in some way, shape or form. All staff are in the process of having discussions with our CEO, Lenni, and our HR Specialist, Lyn, about transitioning into the new HA organisation. We are still expecting that most of the staff employed by State Associations will transfer to HA. In addition to our CEO, we now also have another two of the senior management team selected, and both are starting this month - Leah Atkinson as the Head of Finance and Corporate Services and Basil Mabuza as the Head of Community Programs and Services.
READ MORE >

QUICKLINKS

RESOURCES LIBRARY

Huntington's AUSTRALIA Office

NDIS Registered Provider logo

Phone: 1800 244 735  

BECOME A MEMBER
DONATE

© Huntington’s NSW & ACT Inc. 2020 | Legal Disclaimer & Privacy Policy | Sitemap

Huntington’s NSW ACT acknowledges the Australian Aboriginal and Torres Strait Islander peoples as the first inhabitants of the nation and the traditional custodians of the lands where we live, learn and work.
Huntington’s NSW ACT is committed to embracing diversity and eliminating all forms of discrimination. Huntington’s NSW ACT welcomes all people irrespective of ethnicity, lifestyle choice, faith, sexual orientation and gender identity.

Made by Marameo Design