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Update from Huntington Disease Research Team at Westmead re COVID-19

Published date: 7 April, 2020

advice from the HD Research Team at Westmead.
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Coronavirus Pandemic Huntington’s NSW ACT response

Published date: 7 April, 2020

We will need a plan “B” WORDS LEWIS  KAPLAN While this article will probably be way out of date by the time it reaches you, I wanted to give you a sense of what your association is looking at over the next few weeks and months. First and foremost, we must take extra care, given ... Read more
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COVID-19 Coronavirus pandemic – Huntington’s NSW ACT response

Published date: 17 March, 2020

17 March 2020 Dear Huntington’s NSW ACT client / member / supporter / contractor As you will be aware, the Government’s advice on dealing with the COVID-19 pandemic is changing rapidly. We have decided, in the interests of minimising the risk to our very vulnerable client group, to cancel all face to face activities except ... Read more
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Youth Connection Program grant from…

Published date: 13 February, 2020

Ansvar Insurance Community Education Program to run our Youth Connection Program for a further 12 months
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HD News Summer 2019

Published date: 11 December, 2019

Dear Members and Supporters We are taking the liberty of sending you a hard copy of the Summer 2019 edition of HD News, but if you’d also like to read it online, please do so HERE. (Please note this is a large file – 9 MB.) Best wishes for Christmas and the New Year from the ... Read more
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Global Connections for Huntington’s NSW ACT

Published date: 12 November, 2019

European Huntington's Association (EHA) conference round up
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Community Grant Recepient

Westpac Foundation Community Grant 2019 Recipient

Published date: 26 September, 2019

We’re thrilled to announce that we have been named as one of the #WestpacFoundation Community Grant recipients for 2019. This $10,000 grant will help us to investigate ways to provide the Art & Music therapy clubs to our wider community.
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Check out your latest HD News

Published date: 25 September, 2019

Dear Members and Supporters Please click to access your latest HD Newsletter and an invitation to your Annual General Meeting. We are broadcasting the AGM by videoconference this year for those who can’t attend in person. I look forward to hearing from you if you have any issues or questions arising from articles in the newsletter or more ... Read more
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Tell the government what you think of the NDIS

Published date: 3 September, 2019

There are a 3 opportunities to tell the government about your experiences within the NDIS. Take a look at: https://www.aph.gov.au/…/national_disability_insurance_sche… Submissions are open for: 1. NDIS Planning (closes Friday 6th Sept) 2. Supported Independent Living (closes Friday 6th Sept) 3. General issues around the implementation and performance of the NDIS
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Genetic Testing – Life Insurance Moratorium

Published date: 9 July, 2019

The Moratorium on Genetic Tests in Life Insurance came into effect from 1 July 2019 and will end on 30 June 2024. This means that from 1 July 2019, there will be a temporary suspension on the use of genetic test results as part of an insurance application up to the value of $500,000 (for ... Read more
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