1800 244 735

Helpline (02) 9874 9777

COVID-19 Coronavirus pandemic – Huntington’s NSW ACT response

17 March 2020

Dear Huntington’s NSW ACT client / member / supporter / contractor

As you will be aware, the Government’s advice on dealing with the COVID-19 pandemic is changing rapidly.

We have decided, in the interests of minimising the risk to our very vulnerable client group, to cancel all face to face activities except for individual client meetings from today (17 March) until further notice.  This means that support and carer groups will not meet, and art and music therapy clients will not come to our West Ryde offices.

We are continuing to meet individual NDIS and Youth Connection Program clients for now, but this may also change following health authority advice.

This move to a more restrictive model of activities aims to protect our clients and staff, and to comply with Government requirements. Looking at the situation in countries further down the pandemic’s path, we can expect that many other aspects of normal life will be restricted in the near future.

Please bear with us as we work through the practicalities of this decision, which we don’t take lightly.

Kind regards

Lewis

Lewis Kaplan
Chief Executive Officer

Share on facebook
Share on twitter
Share on pinterest
Share on email

Latest News and Stories

A 4000km cycle to Broome

Published date: 19 April, 2021

Erica and Bill are about to set off on a cycle to Broome. Erica will be the support driver for her partner Bill as they cover over 4000km to reach Broome in June. We are so grateful that you have chosen to fundraise for us.

OUR SUBMISSION to the Joint Standing Committee on the NDIS inquiry into Independent Assessments

Published date: 6 April, 2021

Huntington’s Associations in NSW/ACT, QLD, WA, SA/NT and TAS have partnered with other groups representing people with various neurological diseases to make a joint submission to the Joint Standing Committee on the National Disability Insurance Scheme inquiry into independent assessments under the NDIS. In summary, we do not support the introduction of independent assessments in ... Read more

WAVE PRECISION-HD clinical trials stopped

Published date: 6 April, 2021

An open letter to the Australian Huntington’s community following the 29 March 2021 press release from Wave Life Sciences: On March 29, 2021, Wave Life Sciences issued a press release regarding their PRECISION-HD clinical trials, which are ongoing in Australia and several other countries globally. The key information from the press release is that for ... Read more

An Open Letter to the Australian Huntington’s Community

Published date: 25 March, 2021

Since the news from Roche came out, Australian clinicians, state organisation leaders, and Huntington’s researchers have been meeting on teleconferences to discuss what this means for the Australian Huntington’s disease community.

Generation HD1 trial halted

Published date: 23 March, 2021

The Roche clinical trial called Phase III Generation HD1 has been halted, not by Roche, but by an independent data monitoring committee.

HD Spotlight on Robyn Russell

Published date: 22 March, 2021

Huntington's NSW ACT Board Member and Chair of the Community Advisory Committee shares her story with us. Read more here.