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Coronavirus Pandemic Huntington’s NSW ACT response

We will need a plan “B” WORDS LEWIS  KAPLAN

coronavirus

While this article will probably be way out of date by the time it reaches you, I wanted to give you a sense of what your association is looking at over the next few weeks and months.

First and foremost, we must take extra care, given we work with particularly vulnerable members of society. We have decided we must implement an even more cautious approach than the general public, so closed down all our group activities on 17 March as advised on our web-site and Facebook page.

First and foremost, we must take extra care, given we work with particularly vulnerable members of society.

The Board and staff have created a business continuity plan for the association. We are watching public health advisories closely, and have postponed all our group activities, such as support groups, art and music therapy program. Where possible, online alternatives such as teleconferences will be implemented.

Like many other smaller charities and businesses, the next few weeks and months will be very challenging, so any extra support we can receive from government and the community will be most welcome.

We are creating a Plan B for Walk for hope in case the pandemic still obliges us not to hold large gatherings six months from now.

Unfortunately, many of the events that raise money for vital Huntington’s support services have either been cancelled or postponed. together, we must still continue to provide what support services we can. so, if you are able, please consider making a donation, as if you were still attending a fundraising event  https://huntingtonsnsw.secure.force.com/causeican/Donate/2019.

We have also closed the association’s offices at the West Ryde office. staff have the capacity to work from home, so as much as possible it’s business as usual, with lots more video-conferences, phone calls and emails. Front-line services for NDis participants and Youth Program clients continue to be available remotely.

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Published date: 22 November, 2022

Download your copy of HD News Spring edition by clicking on the link. Some of the highlights in this edition are: Information on the proposed merger Growth of our NDIS team Walk 4 Hope wrap up Youth Connection program update and some exciting news We hope that you enjoy this edition of HD News. If you ... Read more

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The Association Awardsᵀᴹ recognise excellence and accomplishment by associations and outstanding individuals. In addition to recognition, the process of nominating for an Award will be a worthwhile experience as it will encourage associations to consider the factors that make a successful association, turnaround or campaign.
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Published date: 10 October, 2022

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Proposed Huntington’s State Associations’ merger going to a membership vote

Published date: 15 September, 2022

On behalf of the Consortium of Australian Huntington’s Associations (CAHA) we are updating you on the proposed merger of the five State and Territory Associations into one new national body. Each State Board has determined that the merger is the best path forward for enhanced and sustainable supports and services to be provided for people affected by Huntington’s disease.

Update regarding possible merger of State Huntington’s Associations

Published date: 15 August, 2022

On behalf of the Consortium of Australian Huntington’s Associations (CAHA) we are updating you on the proposed merger of the five State and Territory Associations into one new national body. Firstly, we would like to thank everyone for their feedback. We are heartened that the overwhelming majority of you are very supportive. There are some concerns, however, most commonly about preserving local services and community engagement.