1800 244 735

Helpline (02) 9874 9777

Huntington’s NSW ACT Research grant

The Association places a high priority on research into Huntington’s disease and is prepared to fund, within the limits of its research budget, appropriate projects.

Types of Grants are offered: small grants and research grants.

Enroll- HD – Westmead site

A worldwide observational study for Huntington’s Disease families.

Make contact with a health professional at the Westmead site.

Huntington’s NDIS Support Coordination and Specialist Support Coordination

We understand the progressive neurodegenerative nature of Huntington’s disease and the effects it can have on a person’s day-to-day life and the impacts it has on their carers. The support coordinators will work with you at your pace to remove some of your daily stress by coordinating your supports.

We are here to empower you to live a quality life with dignity and autonomy. We know that people who are experiencing symptoms of Huntington’s can lose capacity to direct their own life.

Westmead Hospital Huntington’s Disease Outreach Service

The Outreach Service is part of a multidisciplinary team of medical, nursing and allied health services which provides review, intervention, treatment, case management, counselling, support, education and management of problems and issues associated with Huntington’s for patients, their families and carers. The Physiotherapy service provides education and support, by assisting patients with their mobility, so … Read more

Huntington Disease Service – Westmead Hospital University Clinic

GP/Specialist referral required for this service. This service provides regular Medical review by Huntington disease specialist Neurologists for anyone with Huntington disease, at all stages of the disease. It is also available for those at risk of inheriting Huntington’s disease or undergoing testing for Huntington disease. The Social Workers provide support and advice for social … Read more

Music and Social club

Unfortunately this program has been cancelled due to the COVID-19 pandemic.
We will revisit the program when over 80% of the NSW/ACT population are vaccinated against COVID-19.

‘My Voice’ Art club

Unfortunately this program has been cancelled due to the COVID-19 pandemic.
We will revisit the program when over 80% of the NSW/ACT population are vaccinated against COVID-19.