Huntington’s NDIS Support Coordination

Carers, Family & Friends, People Living with HD, Professionals

What will Huntington’s NSW ACT NDIS support coordinators do for you?

Our core values are:

  •  Integrity
  •  Passion for social justice
  •  Compassion
  •  Resilience
  •  Close connection to our community

Our Support coordinators will:

  •  Work in a person-centred approach, putting you first
  •  Assist you to access community activities, support with health informal supports and funded supports
  •  Help you chose the services that will suit your needs
  •  Assist you to negotiate with providers to maximise the best out of your plan
  •  Make sure service agreements and provides service bookings are created
  •  Work with you to achieve your goals
  •  Organise appropriate assessments e.g. Occupational Therapy (OT) capacity assessment or home modification.
  •  Complete annual reports for the next NDIS planning meeting
  •  Support you to resolve and issues or disputes with service providers
  •  Assist with suitable housing options, respite, supportive accommodation
  •  Guide you through what the NDIS means by reasonable and necessary

What are the benefits working with Huntington’s NSW ACT  NDIS support  coordinators?

At Huntington’s NSW ACT we understand the progressive neurodegenerative nature of Huntington’s disease and the effects it can have on a person’s day-to-day life, and the impacts it has on carers. The support coordinators will work with you at your pace to remove some of your daily stress by coordinating your supports.

We are here to empower you to live a quality life with dignity and autonomy. We know that people who are experiencing symptoms of Huntington’s can lose capacity to direct their own life.

Regardless of your capacity, support coordinators will ensure that you and your carers can build capacity to exercise choice and control throughout your plan. You will be working with support coordinators who are compassionate, caring and empathetic people who are here to listen to you, with a detailed knowledge of Huntington’s disease.

Our mission is to provide Support Coordination only for NDIS participants impacted by Huntington’s disease.

At this stage we will provide Support Coordination to clients residing in the Sydney metropolitan area and adjacent areas (such as the Blue Mountains, Illawarra and Central Coast), limited by the need to be able to reach clients within a day’s return travel.

Huntington’s NSW ACT is a registered and accredited NDIS provider: 4050000632.

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