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Walk 4 Hope 2021….. we remain hopeful

Given the current COVID developments, we thought it important to provide you with an event update.

We are still working towards our scheduled dates in September for Walk 4 Hope. We will continue to monitor the situation and work closely with the NSW Government in the lead up. If we are required to implement any changes, we will notify you as soon as possible on the status of the event and your options should this eventuate.

Please sign up for Walk 4 Hope, choose the location and date that suits you best and get your family, friends, and colleagues to sign up with you. The Walk is an important event for people within the HD community. Not only does it allow us to fundraise much needed funds, but it allows families to come together and support one another, and it is a short 4km walk that can be done at any pace. If we are unable to physically get together it is important to keep active and create awareness in our own neighbourhoods. Be seen – wear pink and green.

  • Parramatta – Parramatta Park on Sunday 26 September
  • Speers Point – Speers Point Park on Sunday 19 September
  • Orange – Cook Park on Saturday 18 September
  • Canberra – Weston Park on Sunday 12 September

SIGN UP HERE TO SHOW YOUR SUPPORT

Keep safe, healthy, and fit! We will be back in touch with an update soon.

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Following the recent announcement about State Association memberships agreeing to proceed with a national merger, Huntington’s Australia (HA) has appointed a new CEO to lead the new association. Lenni Duffield, from Huntington’s WA, has been unanimously endorsed by the HA Board as the inaugural CEO of Huntington’s Australia. Lenni has held senior roles and provided ... Read more

Members have agreed to merge into a new, single entity, Huntington’s Australia

Published date: 6 December, 2022

We’ve got some great news to share! Members of five State and Territory organisations (Queensland, NSW ACT, Tasmania, SA&NT and WA) have agreed to merge into a new, single entity, Huntington’s Australia (HA). We are all very excited about the opportunities this will provide to the Huntington’s community. The merger will bring together five associations ... Read more
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HD News Spring 2022

Published date: 22 November, 2022

Download your copy of HD News Spring edition by clicking on the link. Some of the highlights in this edition are: Information on the proposed merger Growth of our NDIS team Walk 4 Hope wrap up Youth Connection program update and some exciting news We hope that you enjoy this edition of HD News. If you ... Read more

Awarded for the Association Turnaround of the Year

Published date: 10 November, 2022

The Association Awardsᵀᴹ recognise excellence and accomplishment by associations and outstanding individuals. In addition to recognition, the process of nominating for an Award will be a worthwhile experience as it will encourage associations to consider the factors that make a successful association, turnaround or campaign.
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APDA – The Good, The Bad & The Hack

Published date: 10 October, 2022

Huntington's NSW ACT is a member of The Accessible Product Design Alliance (APDA), which is a group of not-for-profit consumer health organisations working together to represent people with chronic conditions who are significantly impacted by inaccessible products and packaging. This campaign aims for those living with a disability to share their experience of different products to raise awareness of accessible and inaccessible experiences, support others to make their lives easier and help us educate product and packaging manufactures about what they need to improve.