1800 244 735

Helpline (02) 9874 9777

How Music therapy began at HDHQ

Music therapy was introduced into the long running Social club in late 2018. Facilitated by Xiaoyan Lu (Lulu), a music therapy student from Western Sydney University . The structured activity was interactive, inclusive and educational, and was aimed at improving a person’s quality of life (QoL). Within this active music therapy program an evaluation tool measuring people’s motivation, enjoyment, emotions and communication was compiled that could assist with further research into gauging gains in health and QoL benefits.

The club members accepted Lulu’s challenge to learn Christmas songs as a group and a few chose to play guitar and ukulele solos. Everyone’s hard work was on display at the Christmas concert, and a sense of pride was evident in the smiles that followed roaring applause.

The reins of our new look Music and Social club were handed to Cathy from Delicious Harmony Music Therapy, for two terms while Lulu enjoyed maternity leave. Cathy considered her time with our members as a “privilege” and was grateful for the warm welcome she received at each session. Members particularly enjoyed playing the drum where they were challenged to use their hands to cross the midline of their body and to use their voices to improvise/vocalise while they played. Handbells were used by participants to follow the beat and play on time for their note. The smiles on members’ faces demonstrated that they were having a wonderful time playing music together.

The Social club then changed format in 2019 as our organisation adjusted to a loss in overall program funding, retiring staff and veteran volunteers. The therapy-based model used for the Art club was adopted; session time was reduced, lunch was replaced with a snack, and Music therapy became a permanent activity alongside a few hardcore games of UNO.

Lulu returned in October 2019, and in February 2020 a partnership was been formed with Harmony Direct Music Therapy and Education to run a new look Music and Social club. Sadly, this activity ceased in March due to COVID-19 restrictions.

Click here to view the calendar of events.

Latest News and Stories

HD news image

HD News Spring 2022

Published date: 22 November, 2022

Download your copy of HD News Spring edition by clicking on the link. Some of the highlights in this edition are: Information on the proposed merger Growth of our NDIS team Walk 4 Hope wrap up Youth Connection program update and some exciting news We hope that you enjoy this edition of HD News. If you ... Read more

Awarded for the Association Turnaround of the Year

Published date: 10 November, 2022

The Association Awardsᵀᴹ recognise excellence and accomplishment by associations and outstanding individuals. In addition to recognition, the process of nominating for an Award will be a worthwhile experience as it will encourage associations to consider the factors that make a successful association, turnaround or campaign.
APDA logo

APDA – The Good, The Bad & The Hack

Published date: 10 October, 2022

Huntington's NSW ACT is a member of The Accessible Product Design Alliance (APDA), which is a group of not-for-profit consumer health organisations working together to represent people with chronic conditions who are significantly impacted by inaccessible products and packaging. This campaign aims for those living with a disability to share their experience of different products to raise awareness of accessible and inaccessible experiences, support others to make their lives easier and help us educate product and packaging manufactures about what they need to improve.

Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial

Published date: 29 September, 2022

SELECT-HD (NCT05032196) is an adaptive trial designed to rapidly optimize dose level and frequency based on early indicators of target engagement. The trial update announced today is being driven by the observation of reductions of mutant huntingtin (mHTT) protein in cerebrospinal fluid (CSF) after study participants received either a single 30 or 60 mg dose ... Read more

Proposed Huntington’s State Associations’ merger going to a membership vote

Published date: 15 September, 2022

On behalf of the Consortium of Australian Huntington’s Associations (CAHA) we are updating you on the proposed merger of the five State and Territory Associations into one new national body. Each State Board has determined that the merger is the best path forward for enhanced and sustainable supports and services to be provided for people affected by Huntington’s disease.

Update regarding possible merger of State Huntington’s Associations

Published date: 15 August, 2022

On behalf of the Consortium of Australian Huntington’s Associations (CAHA) we are updating you on the proposed merger of the five State and Territory Associations into one new national body. Firstly, we would like to thank everyone for their feedback. We are heartened that the overwhelming majority of you are very supportive. There are some concerns, however, most commonly about preserving local services and community engagement.