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Amy’s Story of HD

I’m a friend, a granddaughter, a daughter, a sister, an Aunty, a stepmother, a mother, a wife and I’ve tested positive for Huntington’s Disease (HD).

Imagine a combination of Alzheimer’s, Parkinson’s and schizophrenia all rolled into one. This means that it is a disease of the brain that can be passed down from parent to child. There is no cure for HD. HD has a 50/50 chance of passing that on to a child.

There isn’t a lot of knowledge about HD, It has been hidden away by families because of shame and stigma for generations.

In 2009 I tested positive for Huntington’s Disease.

HD is an inherited genetic disorder that causes the progressive breakdown of nerve cells in the brain. It’s deteriorates a persons physical and mental abilities.

Symptoms usually appear between the ages of 30 to 50. Over time, HD affects the persons ability to reason, walk and speak.

My family, friends and I are wanting to raise much needed awareness and funds for Huntington’s NSW ACT by doing the Walk 4 Hope.

We’re inspired by the work of Huntington’s NSW & ACT Incorporated and wanted to support them by raising money as part of my participation in Walk 4 Hope 2018. Please help me help them by giving whatever you can using the ‘Give Now’ button. The more people that know about Huntington’s NSW & ACT Incorporated, the greater their impact, so please spread the word by sharing my page with your friends and family.

Thank you in advance for your generosity.

 

Amy’s Army raised over $6,500 for Huntington’s in 2018. If you would like to get involved and fundraise for Huntington’s NSW ACT please contact the office 02 9874 9777 or email info@huntingtonsnsw.org.au

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