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Tax Appeal – help Brendan get specialist support

The end of the financial year is just around the corner, and we need your help. You can support the valuable work of Huntington’s NSW ACT by kindly making a tax-deductible donation before June 30. Make a donation today.

Your donations will help our team connect and care for individuals and families affected by Huntington’s Disease across NSW and the ACT. We are planning to launch a new HD specialised service for our community. A counselling service to deal with challenges in a positive way by helping clients to work through issues, explore options, create strategies and enhance self-awareness. People like Brendan* who live in a regional town and find it hard to access the healthcare specialists and support he needs as his HD progresses could access this service.

“I was diagnosed with HD in January this year and since then have really relied on Huntington’s NSW ACT to support my family and me and point us in the right direction. As a young fella I grew up seeing Dad go through HD. That’s one of the reasons my wife and I made the decision to get all the help we can for our family. It was such a relief when I first called to find out that there are things available for us out here. I do love living where we live but having HD makes you realise how far away you are from everything.

So far, we’ve worked out how to link in from here with the HD specialists in Sydney, I’ve attended my first rural support group, and they’ve sent me a heap of information on the NDIS and the other services they provide like their youth program for my kids. They’ve also sent me a doctor’s guidebook about HD that I took with me to my local GP so she could be really informed and some books about kids and HD and the types of questions they might ask.

We’re pretty keen for the kids to link in with the youth program. And the HD counselling service is something I know will be really helpful. It’s a bit hard, especially for someone like me who hasn’t done much of that before, talking about how I’m coping and feeling but I know how important it is to do.”

As someone who believes in our mission and shows support, we are asking you to help us by sending a special gift of $50 or even $75 before June 30. Your generosity will reassure someone like Brendan that they are not alone, and will receive Huntington’s specific support whenever they need, at no cost to them or their family. We are committed to making things better for families with HD, with better treatments, care, and specialised support. We will continue to work to do whatever is necessary so that every person who is affected by HD can live their best life.

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Latest News and Stories

Tax Appeal 2022

Tax Appeal – help Brendan get specialist support

Published date: 14 June, 2022

The end of the financial year is just around the corner, and we need your help. You can support the valuable work of Huntington’s NSW ACT by kindly making a tax-deductible donation before June 30. Your donations will help our team connect and care for individuals and families affected by Huntington’s Disease across NSW and the ACT.
Huntington's Disease Network of Australia

Join the Map-HD Registry today

Published date: 30 May, 2022

Please join with the HDNA as we work toward facilitating the best quality of life for every Australian affected by Huntington’s Disease (HD). Now more than ever, research teams and companies across the globe are testing possible treatments for Huntington’s Disease.
lady doing an announcement

NAA seeks commitments for the 2022 Federal Election

Published date: 10 May, 2022

The Neurological Alliance Australia (NAA) seeks commitments from parties and candidates for the upcoming Federal Election to address the urgent needs of adults and children living with neurological diseases in Australia.  
Virtual meeting

HD NZ Conference Information

Published date: 10 May, 2022

The Huntington’s Disease Associations of New Zealand invite members, non-members, families and healthcare professionals to attend their conference on June 10 and 11. There is an online option if you are interested in finding out more visit their website.

HD News Autumn 2022

Published date: 8 March, 2022

Download your copy of HD News Autumn 2022 here. We hope that you enjoy reading the latest news from Huntington's NSW ACT. If you have any questions or feedback please contact us at the office.

Professor Elizabeth McCusker awarded OAM

Published date: 27 January, 2022

We are delighted to share that Professor Elizabeth McCusker has been awarded OAM by the Governor-General in the Australia Day 2022 Honours List. Prof McCusker was awarded OAM for her service to medicine as a neurologist, particularly in the field of Huntington's disease.