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National Huntington’s Disease Conference

25 May, 2021    

The next Australian national Huntington’s conference is going ahead!

We will be staying virtual as we’ve learned that planning an event is not a good idea for now.

The program will be published shortly. It will take the form of 4 sessions of around 2 hours each over a few days at the end of May and beginning of June 2021.

There is a separate conference website which can be accessed here.

While there will be a registration fee, bona fide HD family members will be able to register for free.

If you can’t make the published times, don’t worry – the sessions will be recorded and available to watch at your leisure.

Latest Events

High Tea 4 HD

Published date: 22 March, 2022

During May - HD Awareness Month - we are going to hold a High Tea 4 HD and we'd love for you to join us. Orange is on Sunday 8th May, Wollongong is on Sunday 15th May, and Penrith is Sunday 22nd May. Places are limited. Be quick to secure your tickets.
Carer Gateway logo

Carer Gateway presentation – The Benevolent Society

Published date: 13 December, 2021

Do you look after a person living with HD in the Sydney metropolitan area; and northern, eastern and western suburbs? Did you know you can access free services and supports through the Carer Gateway? Come and learn about the Carer Gateway – Federal Government Funding and Support for Carers Carer Gateway is an Australian Government ... Read more
Carer Gateway logo

Carer Gateway presentation – CarersNSW

Published date: 13 December, 2021

Do you look after a person living with HD in the Hunter, New England and Central Coast  or the North Coast regions? Did you know you can access free services and supports through the Carer Gateway? Come and learn about the Carer Gateway – Federal Government Funding and Support for Carers Carer Gateway is an ... Read more
Virtual meeting

NOTICE OF 2021 ANNUAL GENERAL MEETING

Published date: 30 September, 2021

The 2021 Annual General Meeting of Huntington’s NSW & ACT Inc. will be held on Saturday 27th November 2021 at 12noon. The AGM will be available via video conference only. Everyone is most welcome — we do hope you can make it!

Walk 4 Hope Canberra

Published date: 29 April, 2021

The Walk4Hope began in 2014 with the aim of raising both awareness and funds to support families impacted by Huntington’s disease. Why a Walk? Isolation is experienced by many people with HD and with that in mind the walk was purposely designed to be inclusive for everyone to take part in their very own Walk4Hope. It is an opportunity for families and friends to come together, to share their stories and to know they are not alone in their battle with HD.

Walk 4 Hope Orange

Published date: 29 April, 2021

The Walk4Hope began in 2014 with the aim of raising both awareness and funds to support families impacted by Huntington’s disease. Why a Walk? Isolation is experienced by many people with HD and with that in mind the walk was purposely designed to be inclusive for everyone to take part in their very own Walk4Hope. It is an opportunity for families and friends to come together, to share their stories and to know they are not alone in their battle with HD.