1800 244 735

Helpline (02) 9874 9777

Coming Soon: EuroBuzz 2012

Stand by for EuroBuzz – hot-off-the-press Huntington’s disease research news from the European HD Network Meeting in Stockholm, brought to you by HDBuzz.

EHDN 2012

The European Huntington’s Disease Network (EHDN) is a Europe-wide collaboration of HD professionals, researchers and people affected by HD. EHDN exists to encourage sharing information and ideas about HD, studies and possible treatments, throughout Europe and beyond

EHDN 2012, in Stockholm, Sweden, is the 7th meeting of the whole Network. It’s one of the largest gatherings of HD researchers in the world, and this year’s meeting promises to be the biggest and most exciting EHDN conference yet. Nearly a thousand delegates are expected to attend, and over 300 posters and dozens of fascinating and innovative platform talks will be presented – all dedicated to understanding and developing treatments for Huntington’s disease.

The meeting kicks off this Friday, 14th September, and runs until Sunday 16th.

EuroBuzz!

HDBuzz reporters Dr Ed Wild and Dr Jeff Carroll will be bringing you live updates from the meeting, starting at 9am Swedish time (8am BST / 3am EDT) on Friday 14th September. Follow @hdbuzzfeed on Twitter to get the live feed. We’re calling our coverage EuroBuzz 2012.

Each day, all our updates will be brought together at hdbuzz.net as a single news story.

But wait – there’s more

At the end of each day’s science presentations on Friday 14th and Saturday 15th September, Ed and Jeff will take to the stage to interview the top scientists who’ve presented their research at the meeting. We’ll be getting the lowdown directly, and helping our guests to steer clear of jargon and science-speak.

Video of these live sessions will be available shortly afterwards, at hdbuzz.net.

Get involved

We want you to get involved, by sending us questions to ask our expert guests.

Just follow @hdbuzzfeed on Twitter and send us your question as a tweet.

Our confirmed guests so far are:

    n

  • Dr Ray Truant: the huntingtin protein and how it causes damage

  • n

  • Dr Mike Orth: using advanced scanning techniques to detect brain changes before disease onset

  • n

  • Dr Bev Davidson – gene silencing treatments for Huntington’s disease

  • n

  • Dr Lisa Ellerby – stem cells and how they can help fight HD

  • n

Plus we’ll be covering the controversial topic of diagnosing ‘disease onset’ in HD and phosphodiesterase (PDE) inhibitors, a new and exciting possible approach to treating HD symptoms.

You can also see the program for the whole meeting at the EHDN website, euro-hd.net.

We’re looking forward to three days of great science, and we hope you’ll join us for EuroBuzz 2012!

Latest Research Articles

Disappointing news from Novartis about branaplam and the VIBRANT-HD trial

Published date: 9 December, 2022

The pharmaceutical company Novartis has released a community update which announces that they are ending development of branaplam, a huntingtin lowering drug, for possible treatment in Huntington’s disease (HD). This news comes following recent bad news about side effects of branaplam in HD patients, being tested in the VIBRANT-HD clinical trial, dosing of which was ... Read more

Update on the PTC Therapeutics PIVOT-HD Trial

Published date: 2 November, 2022

Recruitment of participants into the US arm of the PTC Therapeutics PIVOT-HD trial has been paused. Since this announcement, there have been a lot of different (and confusing!) headlines about the pause in recruitment. In this article, we will lay out what is going on and what this announcement means. What is the aim of ... Read more

Forward momentum for Roche and Wave in latest news about huntingtin-lowering trials

Published date: 30 September, 2022

In the past week or so, during and following a big HD research conference, two companies developing medicines for Huntington’s disease announced news about their huntingtin-lowering drugs. First, the pharmaceutical company Roche announced plans for a new clinical trial of tominersen. Then, the genetic medicines company Wave Life Sciences shared early data showing that its ... Read more

Focusing in on fibrils; scientists give us a glimpse of huntingtin protein clumps

Published date: 8 September, 2022

A group of scientists from the EPFL in Lausanne, Switzerland have published a paper in the Journal of the American Chemical Society, describing clumps made up of a fragment of the huntingtin protein. A word that’s commonly used to describe these is “aggregates.” Using very powerful microscopes, the team was able to zoom in and ... Read more

Hereditary Disease Foundation (HDF) conference 2022 – Day 4

Published date: 2 September, 2022

DNA repair and CAG repeat instability The effect of HTT lowering on CAG repeat expansions Welcome to last day of the @hdfcures conference! We’ll only be sharing a few talks from today’s sessions, which focus on DNA repair. The first is from HDBuzz’s very own Jeff Carroll! Jeff will be sharing his work on HTT ... Read more

Hereditary Disease Foundation (HDF) conference 2022 – Day 3

Published date: 1 September, 2022

Pre-clinical work moving toward trials New tools to lower HTT showing promise in animal models Welcome back! The first talk we will be tweeting about today is from Anastasia Khvorova, who will be telling us about her teams work on lowering of Huntingtin using technology called RNAi. One of the problems in studying drug delivery ... Read more