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Story articles

Amy’s Story of HD

Published date: 10 December, 2018

I’m a friend, a granddaughter, a daughter, a sister, an Aunty, a stepmother, a mother, a wife and I’ve tested positive for Huntington’s Disease (HD). Imagine a combination of Alzheimer’s, Parkinson’s and schizophrenia all rolled into one. This means that it is a disease of the brain that can be passed down from parent to ... Read more

Hope for Huntington’s

Published date: 31 July, 2018

HCF Health Agenda recently published an article ‘Hope for Huntington’s’ in the July 2018 publication. In the article Associate Professor Clement Loy say that he is cautiously optimistic ‘Out of the 100 or so trials that have been carrier out in the past few decades, this recent one is the most exciting. I am optimistic ... Read more

Would you want to know?

Published date: 20 October, 2016

That’s Life Magazine published an article ‘Would you want to know’ on the 7th October 2016. This article is about Holly Faulkner and her family. The writer of the article Sarah Firth, starts the story with “if a heart breaking genetic disease ran in your family, would you take the test?” To read the story ... Read more

How Art therapy began at HDHQ

Published date: 1 July, 2015

In 2015 Stephen Dernocoure, a highly experienced art facilitator, was engaged to guide a small client group in finding their voice again through the use of visual and poetic art forms (pilot). Participants enjoy the calmness of creativity, the pleasure of friendship and a renewed sense of well-being. Due to positive client feedback we were ... Read more

Miss Elsie Court and Elsie Court Cottage

Published date: 1 January, 1996

Elsie Court Cottage was acquired by the Association in 1996 as a result of a generous bequest by Miss Elsie Court. The family of Miss Court requested that the bequest purchase capital used to for the benefit of people with Huntington's Disease and their families.