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Story articles

90 years old and celebrating life

Published date: 7 April, 2020

90 years old and celebrating life The Matriarch of Team Haddy recently turned 90. Each year Team Haddy join us for the Walk 4 Hope at Parramatta and get together with many of their family members.
Walk 4 Hope 2019


Published date: 7 April, 2020

because of Huntington's family supporters

HD Spotlight on Rachael Brooking

Published date: 11 December, 2019

Convenor HD Awareness Orange and Orange HD Support Group Community profile - Orange is leading awareness raising

How Music therapy began at HDHQ

Published date: 1 October, 2019

Music therapy was introduced into the long running Social club in late 2018. Facilitated by Xiaoyan Lu (Lulu), a music therapy student from Western Sydney University . The structured activity was interactive, inclusive and educational, and was aimed at improving a person’s quality of life (QoL). Within this active music therapy program an evaluation tool ... Read more

In Memory of Russell

Published date: 26 September, 2019

Russell was always a bit of a larrikin who loved to be in the thick of things whether playing UNO, bowls, footy tipping competitions or telling us his big fishing tales.

HD spotlight on Dr Therese Alting

Published date: 26 September, 2019

Dr Therese Alting, PhD; Huntington’s NSW ACT Board Secretary

HD Spotlight on John Conaghan

Published date: 19 June, 2019

SOCIAL WORKER Hunter HD Service, John Hunter Hospital, Newcastle NSW Q. Why did you decide to become a social worker? A.  I think I had been pondering for a while about what to do with my life. I liked the humanities at uni and it probably grew from there. I also think that various life ... Read more

Three Generations of HD

Published date: 17 December, 2018

Three Generations of HD. Our hope by fundraising is not only to raise money for the HD Association, but to also raise awareness within our network of family, friends, colleagues and the broader community. In our experience, unless you know someone who has HD, or a family affected by HD, it is not a widely known disease.

Amy’s Story of HD

Published date: 10 December, 2018

I’m a friend, a granddaughter, a daughter, a sister, an Aunty, a stepmother, a mother, a wife and I’ve tested positive for Huntington’s Disease (HD). Imagine a combination of Alzheimer’s, Parkinson’s and schizophrenia all rolled into one. This means that it is a disease of the brain that can be passed down from parent to ... Read more

Hope for Huntington’s

Published date: 31 July, 2018

HCF Health Agenda recently published an article ‘Hope for Huntington’s’ in the July 2018 publication. In the article Associate Professor Clement Loy say that he is cautiously optimistic ‘Out of the 100 or so trials that have been carrier out in the past few decades, this recent one is the most exciting. I am optimistic ... Read more