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Miss Elsie Court and Elsie Court Cottage

Elsie Court Cottage was acquired by the Association in 1996 as a result of a generous bequest by Miss Elsie Court, who died in 1989. The family of Miss Court had requested that the bequest, made in 1990, be used to provide something of a capital nature, such as a building, that would be used for the benefit of people with Huntington’s Disease and their families.

The Association had a successful working relationship with Lidcombe Hospital for over twenty years and its office was located at Lidcombe Hospital from 1986. However by 1992 the closure of the hospital was being planned, and the Association decided to use the bequest to find appropriate accommodation in a community setting. The cottage now provides the Association’s office accommodation and a venue for education, counselling, social and meeting activities.

Latest News and Stories

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HD News Spring 2022

Published date: 22 November, 2022

Download your copy of HD News Spring edition by clicking on the link. Some of the highlights in this edition are: Information on the proposed merger Growth of our NDIS team Walk 4 Hope wrap up Youth Connection program update and some exciting news We hope that you enjoy this edition of HD News. If you ... Read more

Awarded for the Association Turnaround of the Year

Published date: 10 November, 2022

The Association Awardsᵀᴹ recognise excellence and accomplishment by associations and outstanding individuals. In addition to recognition, the process of nominating for an Award will be a worthwhile experience as it will encourage associations to consider the factors that make a successful association, turnaround or campaign.
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APDA – The Good, The Bad & The Hack

Published date: 10 October, 2022

Huntington's NSW ACT is a member of The Accessible Product Design Alliance (APDA), which is a group of not-for-profit consumer health organisations working together to represent people with chronic conditions who are significantly impacted by inaccessible products and packaging. This campaign aims for those living with a disability to share their experience of different products to raise awareness of accessible and inaccessible experiences, support others to make their lives easier and help us educate product and packaging manufactures about what they need to improve.

Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial

Published date: 29 September, 2022

SELECT-HD (NCT05032196) is an adaptive trial designed to rapidly optimize dose level and frequency based on early indicators of target engagement. The trial update announced today is being driven by the observation of reductions of mutant huntingtin (mHTT) protein in cerebrospinal fluid (CSF) after study participants received either a single 30 or 60 mg dose ... Read more

Proposed Huntington’s State Associations’ merger going to a membership vote

Published date: 15 September, 2022

On behalf of the Consortium of Australian Huntington’s Associations (CAHA) we are updating you on the proposed merger of the five State and Territory Associations into one new national body. Each State Board has determined that the merger is the best path forward for enhanced and sustainable supports and services to be provided for people affected by Huntington’s disease.

Update regarding possible merger of State Huntington’s Associations

Published date: 15 August, 2022

On behalf of the Consortium of Australian Huntington’s Associations (CAHA) we are updating you on the proposed merger of the five State and Territory Associations into one new national body. Firstly, we would like to thank everyone for their feedback. We are heartened that the overwhelming majority of you are very supportive. There are some concerns, however, most commonly about preserving local services and community engagement.