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Introducing Associate Professor Elizabeth McCusker – guest speaker at AGM

Huntington’s NSW ACT invited Associate Professor Liz McCusker to be a special guest speaker at our 2020 Annual General Meeting. In acknowledgement of her retirement after so many years of service to the Huntington’s community we asked Josh Szeps to conduct the interview.

Prof McCusker undertook neurology training in the USA and worked with Prof Ira Shoulson who was to become a major world leader in HD.

After returning to Australia in the late 1980s, she continued her work at the HD clinic at Lidcombe Hospital. Back then no treatment existed for this fatal genetic condition that affects people’s movement, thinking, personality and mood. Longer term medical care was also non-existent or erratic and patients and their families were often left to their own devices. Prof McCusker recognised that more could be done and alongside many other pioneers, fought to help these struggling families.

In 1995 Prof McCusker moved to Westmead Hospital where she became the Director of the HD service. This included a multidisciplinary team to meet the complex needs of HD families and community outreach services. This clinic went on to become one of the five largest HD clinics in the world.

In 2008 Prof McCusker took on a research role and continued to work tirelessly on international and local drug trials, and observational studies.

In 2020 Prof McCusker retired from Westmead Hospital after more than 40 years of service to the Huntington’s community as a clinical and research leader.

Latest News and Stories

Tax Appeal 2022

Tax Appeal – help Brendan get specialist support

Published date: 14 June, 2022

The end of the financial year is just around the corner, and we need your help. You can support the valuable work of Huntington’s NSW ACT by kindly making a tax-deductible donation before June 30. Your donations will help our team connect and care for individuals and families affected by Huntington’s Disease across NSW and the ACT.
Huntington's Disease Network of Australia

Join the Map-HD Registry today

Published date: 30 May, 2022

Please join with the HDNA as we work toward facilitating the best quality of life for every Australian affected by Huntington’s Disease (HD). Now more than ever, research teams and companies across the globe are testing possible treatments for Huntington’s Disease.
lady doing an announcement

NAA seeks commitments for the 2022 Federal Election

Published date: 10 May, 2022

The Neurological Alliance Australia (NAA) seeks commitments from parties and candidates for the upcoming Federal Election to address the urgent needs of adults and children living with neurological diseases in Australia.  
Virtual meeting

HD NZ Conference Information

Published date: 10 May, 2022

The Huntington’s Disease Associations of New Zealand invite members, non-members, families and healthcare professionals to attend their conference on June 10 and 11. There is an online option if you are interested in finding out more visit their website.

HD News Autumn 2022

Published date: 8 March, 2022

Download your copy of HD News Autumn 2022 here. We hope that you enjoy reading the latest news from Huntington's NSW ACT. If you have any questions or feedback please contact us at the office.

Professor Elizabeth McCusker awarded OAM

Published date: 27 January, 2022

We are delighted to share that Professor Elizabeth McCusker has been awarded OAM by the Governor-General in the Australia Day 2022 Honours List. Prof McCusker was awarded OAM for her service to medicine as a neurologist, particularly in the field of Huntington's disease.