1800 244 735

Helpline (02) 9874 9777

CORPORATE SUPPORT

WE ARE PLEASED to share with you that the Westpac Foundation has made a $10,000 grant in support of our West Ryde Art and Therapy programs.

This fabulous grant occurred because a Westpac employee nominated our organisation to apply for the grant and encouraged other staff within Westpac to vote for Huntington’s NSW ACT.

In addition to the grant, Westpac has offered non-financial support in the form of a Westpac group employee who will act as a local ambassador for our organisation. The Ambassador’s role is to tap into resources, networks and profiling opportunities across the Westpac group. the ambassador is selected based on a strong interest and passion for the community and may already have a connection to Huntington’s.

We are looking forward to working with our ambassador (from a Huntington’s family) who is currently snorkeling in the Caribbean.

We have also been fortunate to gain a Board Observer through the Westpac Community Support Program.

Through a staff member’s involvement on our fundraising committee the Macquarie Bank foundation supported the Walk 4 Hope in 2018 through the matching donation program with a donation of $10,111.74. Every year Suncorp staff volunteer for the Parramatta Walk 4 Hope. They also raise funds which are matched by Suncorp.

The Suncorp team has been invaluable to the walks every year: they acted as marshals on the walking route, organised the music and children’s games as well as some keen karaoke lovers in the mix.

Many organisations assist not for profit organisations by matching staff donations.

This is a great way to involve your workplace and can double your donation.
Does your workplace have a payroll giving program?

Latest News and Stories

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HD News Spring 2022

Published date: 22 November, 2022

Download your copy of HD News Spring edition by clicking on the link. Some of the highlights in this edition are: Information on the proposed merger Growth of our NDIS team Walk 4 Hope wrap up Youth Connection program update and some exciting news We hope that you enjoy this edition of HD News. If you ... Read more

Awarded for the Association Turnaround of the Year

Published date: 10 November, 2022

The Association Awardsᵀᴹ recognise excellence and accomplishment by associations and outstanding individuals. In addition to recognition, the process of nominating for an Award will be a worthwhile experience as it will encourage associations to consider the factors that make a successful association, turnaround or campaign.
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APDA – The Good, The Bad & The Hack

Published date: 10 October, 2022

Huntington's NSW ACT is a member of The Accessible Product Design Alliance (APDA), which is a group of not-for-profit consumer health organisations working together to represent people with chronic conditions who are significantly impacted by inaccessible products and packaging. This campaign aims for those living with a disability to share their experience of different products to raise awareness of accessible and inaccessible experiences, support others to make their lives easier and help us educate product and packaging manufactures about what they need to improve.

Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial

Published date: 29 September, 2022

SELECT-HD (NCT05032196) is an adaptive trial designed to rapidly optimize dose level and frequency based on early indicators of target engagement. The trial update announced today is being driven by the observation of reductions of mutant huntingtin (mHTT) protein in cerebrospinal fluid (CSF) after study participants received either a single 30 or 60 mg dose ... Read more

Update regarding possible merger of State Huntington’s Associations

Published date: 15 August, 2022

On behalf of the Consortium of Australian Huntington’s Associations (CAHA) we are updating you on the proposed merger of the five State and Territory Associations into one new national body. Firstly, we would like to thank everyone for their feedback. We are heartened that the overwhelming majority of you are very supportive. There are some ... Read more
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HD News Winter 2022

Published date: 1 August, 2022

This is your downloadable copy of the HD News Winter 2022 edition. In this edition you'll be able to read up on the Walk 4 Hope and how to register, HDNA and the map-HD registry and more.