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Helpline (02) 9874 9777

CORPORATE SUPPORT

WE ARE PLEASED to share with you that the Westpac Foundation has made a $10,000 grant in support of our West Ryde Art and Therapy programs.

This fabulous grant occurred because a Westpac employee nominated our organisation to apply for the grant and encouraged other staff within Westpac to vote for Huntington’s NSW ACT.

In addition to the grant, Westpac has offered non-financial support in the form of a Westpac group employee who will act as a local ambassador for our organisation. The Ambassador’s role is to tap into resources, networks and profiling opportunities across the Westpac group. the ambassador is selected based on a strong interest and passion for the community and may already have a connection to Huntington’s.

We are looking forward to working with our ambassador (from a Huntington’s family) who is currently snorkeling in the Caribbean.

We have also been fortunate to gain a Board Observer through the Westpac Community Support Program.

Through a staff member’s involvement on our fundraising committee the Macquarie Bank foundation supported the Walk 4 Hope in 2018 through the matching donation program with a donation of $10,111.74. Every year Suncorp staff volunteer for the Parramatta Walk 4 Hope. They also raise funds which are matched by Suncorp.

The Suncorp team has been invaluable to the walks every year: they acted as marshals on the walking route, organised the music and children’s games as well as some keen karaoke lovers in the mix.

Many organisations assist not for profit organisations by matching staff donations.

This is a great way to involve your workplace and can double your donation.
Does your workplace have a payroll giving program?

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Latest News and Stories

PGT will be available for Huntington’s families

Published date: 18 May, 2021

Huntington’s families now have several options when considering when and how to have children. One of these options is PGD – Pre-implantation Genetic Diagnosis, sometimes known as PGT. This allows people to use IVF technology to ensure that only embryos without the HD-causing mutation are implanted, meaning that these children will grow up HD-free.

A 4000km cycle to Broome

Published date: 19 April, 2021

Erica and Bill are about to set off on a cycle to Broome. Erica will be the support driver for her partner Bill as they cover over 4000km to reach Broome in June. We are so grateful that you have chosen to fundraise for us.

OUR SUBMISSION to the Joint Standing Committee on the NDIS inquiry into Independent Assessments

Published date: 6 April, 2021

Huntington’s Associations in NSW/ACT, QLD, WA, SA/NT and TAS have partnered with other groups representing people with various neurological diseases to make a joint submission to the Joint Standing Committee on the National Disability Insurance Scheme inquiry into independent assessments under the NDIS. In summary, we do not support the introduction of independent assessments in ... Read more

WAVE PRECISION-HD clinical trials stopped

Published date: 6 April, 2021

An open letter to the Australian Huntington’s community following the 29 March 2021 press release from Wave Life Sciences: On March 29, 2021, Wave Life Sciences issued a press release regarding their PRECISION-HD clinical trials, which are ongoing in Australia and several other countries globally. The key information from the press release is that for ... Read more

An Open Letter to the Australian Huntington’s Community

Published date: 25 March, 2021

Since the news from Roche came out, Australian clinicians, state organisation leaders, and Huntington’s researchers have been meeting on teleconferences to discuss what this means for the Australian Huntington’s disease community.

Generation HD1 trial halted

Published date: 23 March, 2021

The Roche clinical trial called Phase III Generation HD1 has been halted, not by Roche, but by an independent data monitoring committee.