1800 244 735

Helpline (02) 9874 9777

90 years old and celebrating life

The Matriarch of Team Haddy recently turned 90. Each year Team Haddy join us for the Walk 4 Hope at Parramatta and get together with many of their family members.

Robyn Russell said Our Mum, Pauline Hadfield, turned 90 on January 25th. Despite being a little reluctant at first, she soon warmed to the idea of having a celebration when she realised it was a good excuse for a long overdue family reunion. People travelled from interstate to attend.

Mum is the eldest of eight children, six of whom are still alive; five were present at the party. Mum of course has five children and we were all there, along with our families! It was a wonderful day and a fit-ting way to celebrate Mum’s life. We really feel blessed to have Pauline as our mum and the matriarch of our extended family.

Share on facebook
Share on twitter
Share on pinterest
Share on email

Latest News and Stories

OUR SUBMISSION to the Joint Standing Committee on the NDIS inquiry into Independent Assessments

Published date: 6 April, 2021

Huntington’s Associations in NSW/ACT, QLD, WA, SA/NT and TAS have partnered with other groups representing people with various neurological diseases to make a joint submission to the Joint Standing Committee on the National Disability Insurance Scheme inquiry into independent assessments under the NDIS. In summary, we do not support the introduction of independent assessments in ... Read more

WAVE PRECISION-HD clinical trials stopped

Published date: 6 April, 2021

An open letter to the Australian Huntington’s community following the 29 March 2021 press release from Wave Life Sciences: On March 29, 2021, Wave Life Sciences issued a press release regarding their PRECISION-HD clinical trials, which are ongoing in Australia and several other countries globally. The key information from the press release is that for ... Read more

An Open Letter to the Australian Huntington’s Community

Published date: 25 March, 2021

Since the news from Roche came out, Australian clinicians, state organisation leaders, and Huntington’s researchers have been meeting on teleconferences to discuss what this means for the Australian Huntington’s disease community.

Generation HD1 trial halted

Published date: 23 March, 2021

The Roche clinical trial called Phase III Generation HD1 has been halted, not by Roche, but by an independent data monitoring committee.

HD Spotlight on Robyn Russell

Published date: 22 March, 2021

Huntington's NSW ACT Board Member and Chair of the Community Advisory Committee shares her story with us. Read more here.

HD News Autumn 2021

Published date: 22 March, 2021

Read our Autumn edition of HD News.