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Posts
News
- We are so close to merging into Huntington’s Australia
- We are recruiting – Fundraising & Events Coordinator
- HD News Winter 2023
- We are recruiting – HD Specialist
- Merger date delayed for Huntington’s Australia
- An update on all things Huntington’s Australia
- HD News Autumn 2023
- Ailsa’s Legacy – HD Education Scholarship
- NAA pre-budget submission for the 2023-24 Federal Budget
- HD Heroes book release
- We are recruiting – Support Services Administrator
- CEO announcement for Huntington’s Australia
- Members have agreed to merge into a new, single entity, Huntington’s Australia
- HD News Spring 2022
- Awarded for the Association Turnaround of the Year
- APDA – The Good, The Bad & The Hack
- Proposed Huntington’s State Associations’ merger going to a membership vote
- Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial
- Possible merger of Huntington’s State Associations
- HD News Winter 2022
- Summer Foundation report on effective housing and support models
- Tax Appeal – help Brendan get specialist support
- Join the Map-HD Registry today
- Feasibility study into forming a single national entity
- NAA seeks commitments for the 2022 Federal Election
- HD NZ Conference Information
- HD News Autumn 2022
- Professor Elizabeth McCusker awarded OAM
- Roche to continue tominersen research with new Phase II trial for early stage HD
- We are recruiting – NDIS Support Coordinator
- Update on research from Dr Therese Alting
- CHDI Foundation Postcards
- HD News Spring 2021
- Celebrating National Carers week
- Accessible Product Design Alliance
- Could you become the next Treasurer of Huntington’s NSW ACT?
- We are recruiting a Social Worker for the Illawarra
- IHMRI Science Week Webinars
- PGT to start 1st November
- HD News Winter 2021
- PGT will be available for Huntington’s families
- OUR SUBMISSION to the Joint Standing Committee on the NDIS inquiry into Independent Assessments
- WAVE PRECISION-HD clinical trials stopped
- An Open Letter to the Australian Huntington’s Community
- Generation HD1 trial halted
- HD News Autumn 2021
- Neurological Alliance Australia Position Statement on Aged Care – Dec 2020
- Christmas Appeal – The Year That Was….
- Community Survey 2020
- International Day of People with Disability
- Prof Elizabeth McCusker interview
- 5 Days of Wellness webinars
- Spring 2020 newsletter
- Walk 4 Hope Speers Point update
- We are recruiting Board Members
- Our submission to the Disability Royal Commission
- HD News Winter 2020
- Neurological Alliance Australia – Statement on Expanded Telehealth
- UPDATE from ROCHE clinical research program into HD drugs
- Exercise at home – for HD families
- Update from Huntington Disease Research Team at Westmead re COVID-19
- Coronavirus Pandemic Huntington’s NSW ACT response
- COVID-19 Coronavirus pandemic – Huntington’s NSW ACT response
- Youth Connection Program grant from…
- HD News Summer 2019
- Global Connections for Huntington’s NSW ACT
- Westpac Foundation Community Grant 2019 Recipient
- Check out your latest HD News
- Tell the government what you think of the NDIS
- Genetic Testing – Life Insurance Moratorium
- ROCHE HD DRUG TRIAL ANNOUNCED FOR SYDNEY
- HD Service at Westmead approved to participate in 2 new drug trials
- Election commitments sought from federal politicians
- New Chief Executive Office announced
Stories
- HD Spotlight on Gabby Phillips
- Walk 4 Hope 2022 wrap up
- HD Spotlight on Jaime Bodiam
- Introducing Prof. Kenneth Serbin – guest speaker at AGM
- HD Spotlight on Amy Hale
- Walk 4 Hope Virtual Launch
- Walk 4 Hope 2021….. we remain hopeful
- A 4000km cycle to Broome
- HD Spotlight on Robyn Russell
- Introducing Associate Professor Elizabeth McCusker – guest speaker at AGM
- Hunt4Hope Op Shop
- The HD spotlight on Kerryn and John Salmon
- 90 years old and celebrating life
- CORPORATE SUPPORT
- HD Spotlight on Rachael Brooking
- How Music therapy began at HDHQ
- In Memory of Russell
- HD spotlight on Dr Therese Alting
- HD Spotlight on John Conaghan
- Three Generations of HD
- Amy’s Story of HD
- Hope for Huntington’s
- Would you want to know?
- How Art therapy began at HDHQ
- Miss Elsie Court and Elsie Court Cottage
Events
Resource
- Position Statement: What we don’t need to prove but need to do in multidisciplinary treatment and care in Huntington’s disease
- National Conference recordings
- Medical ID card
- Carer Emergency care plan
- Australians need more protection against genetic discrimination: health experts
- Normalising life at risk of Huntington’s disease. A qualitative study of backgrounds and coping strategies of fears of genetic discrimination
- Dancing at the Vatican documentary
- Huntington Study Group education
- Clinical trials: your questions answered
- Carer self-care and wellbeing workshops
- A Caregiver’s Handbook for Advanced-Stage Huntington Disease – Pollard, J. (ed.) 1999
- Isolation tips and support for young people and their families
- Global Connections for Huntington’s NSW ACT
- Coping with self-isolation for People with Huntington’s disease
- Coping well and finding resilience
- Travel Assistance
- NDIS assisted technology and home modifications
- Insurance Breakthrough
- Predictive testing for Huntington’s disease: A big decision for young people
- I’m a carer and I need a break…
- HD Insights Podcast Series
- DISABILITY Royal Commission
- NDIS: Moving from home into residential aged care
- What is advocacy?
- NDIS planning
- What is Huntington’s disease (HD)?
- Understanding Behaviour in HD
- Genetic testing
- Huntington’s Disease
- What is Huntingtons
- The Inheritance documentary
- Presymptomatic Testing – The Consumer Experience
- Coping with Loss and Grief
Research
- Cry your eyes out: detecting huntingtin in tears
- The director’s cut: how CAG repeats change the editing of genetic messages
- Understanding expansions at the single cell level
- Huntington's Disease Therapeutics Conference 2024 – Day 3
- Huntington's Disease Therapeutics Conference 2024 – Day 2
- Huntington's Disease Therapeutics Conference 2024 – Day 1
- CRISPR-based drugs: one giant leap for mankind
- Making babies: having a family, the HD way
- Steady progress from uniQure – promising data to end the year
- Putting it in print: GENERATION HD1 study results published
- Regulating repetition: Gaining control of CAG repeats could slow progression of Huntington’s disease
- Getting to the Root of Huntington's Disease: A Plant-Based Approach
- Could halting CAG expansions be a new treatment for HD?
- Tipping the balance; new insights into HD genetic modifiers
- Drug to treat movement symptoms of HD approved by FDA
- Youthful competitors: young brain cells oust the old
- Updates from PTC Therapeutics and uniQure on their huntingtin-lowering trials
- Start here!
- Huntington’s disease therapeutics conference 2023 – Day 3
- Huntington’s disease therapeutics conference 2023 – Day 2
- Huntington’s disease therapeutics conference 2023 – Day 1
- PROOF-HD study of pridopidine ends with negative result
- Astrocytes: The new star in HD research?
- Roche Phase II GENERATION HD2 study underway
- Disappointing news from Novartis about branaplam and the VIBRANT-HD trial
- Update on the PTC Therapeutics PIVOT-HD Trial
- Forward momentum for Roche and Wave in latest news about huntingtin-lowering trials
- Focusing in on fibrils; scientists give us a glimpse of huntingtin protein clumps
- Hereditary Disease Foundation (HDF) conference 2022 – Day 4
- Hereditary Disease Foundation (HDF) conference 2022 – Day 3
- Hereditary Disease Foundation (HDF) conference 2022 – Day 1
- Hereditary Disease Foundation (HDF) conference 2022 – Day 2
- Serious side effects reported for some people treated with the huntingtin-lowering drug AMT-130, currently in clinical trials
- Sad news from Novartis: dosing suspended in VIBRANT-HD trial of branaplam
- Updates from uniQure about their gene therapy for Huntington's disease
- A new roadmap to track Huntington’s disease progression
- Revisiting vitamin therapy for HD
- A spoonful of branaplam helps the huntingtin go down
- Huntington’s disease therapeutics conference 2022 – Day 3
- Huntington’s disease therapeutics conference 2022 – Day 1
- Huntington’s disease therapeutics conference 2022 – Day 2
- Shining a spotlight on huntingtin: a tool to measure huntingtin-lowering in real time
- BAC to basics: a more accurate mouse model for Huntington's disease
- Oral drug may change the story for huntingtin lowering
- Finding the silver lining: an update on the Roche GENERATION-HD1 trial data
- KINECT-HD trial shows valbenazine improves involuntary movements in Huntington's disease
- “Seeing” the toxic huntingtin protein in people with HD
- Updates from the EHDN Meeting 2021
- Real talk: Q&A with Roche about GENERATION-HD1
- Another tool in the box: Creation of a molecular “dimmer switch” advances gene editing
- Unpacking recent gene therapy press
- Does blood hold the key to testing treatments earlier in HD patients?
- A first for CRISPR gene editing could have wider applications for human disease
- Scientists identify precisely how pridopidine works in models of Huntington’s disease
- Huntington's disease therapeutics conference 2021 – Day 3
- Huntington’s disease therapeutics conference 2021 – Day 1
- Huntington's disease therapeutics conference 2021 – Day 2
- Huntington’s disease clinical trial round up
- Good news from uniQure: gene therapy trial on track, and promising data in animals
- Disappointing Results from Wave’s PRECISION-HD1 and 2 Trials
- Sad News from Roche and Ionis – ASO Trial Halted Early
- Vaccines and HD
- GPR52: Exploring a new way to lower huntingtin
- Updates from the EHDN Plenary Meeting 2020
- Uncovering the dark side of DNA repair to design HD treatments
- Huntington Study Group (HSG) 2020 Annual Conference: HD in Focus – Day 2
- Huntington Study Group (HSG) 2020 Annual Conference: HD in Focus – Day 1
- Treatment for neurological disorder could be repurposed for Huntington’s disease patients
- Sad news from the SIGNAL study: pepinemab does not influence HD symptoms
- When genes are unstable: targeting somatic instability in HD
- Working as a team: Changes in brain development mean some brain regions may be slacking off
- Caution urged for the use of gene-editing technology CRISPR
- HD and Histamines: Targeting Hybrid Receptors to Quiet Stressful Brain Talk
- Changing jobs: converting other cell types into neurons
- HD Young Adult Study defines the sweet spot: symptom-free with measurable changes
- Fountain of youth: HTT protein repairs neurons by maintaining youthful state
- Light and Sleep
- New molecule can reverse the Huntington's disease mutation in lab models
- What does COVID-19 mean for Huntington’s disease families and HD research?
- Huntington’s disease therapeutics conference 2020 – Day 1
- THE LATEST HD SCIENCE
- Huntington’s disease therapeutics conference 2020 – Day 3
- Huntington’s disease therapeutics conference 2020 – Day 2
- Screening the entire genome for new drug targets for HD
- The third dimension: using minibrains to understand brain development changes in HD
- Unpacking Wave's PRECISION-HD2 huntingtin-lowering trial announcement
- Huntington’s Disease research update
- Could molecular handcuffs lower the protein that causes Huntington's disease?
- Exciting new Huntingtin lowering tool described
- Details emerge of first Huntington’s disease gene therapy clinical trial
- Fresh Updates from First Huntingtin Lowering Study Publication
- An Updated Trial Design for Roche's Huntingtin Lowering Trial
- When interrupting is good: genetic hiccups that protect against Huntington's disease
- Huntington's disease therapeutics conference 2019 – Day 3
- Huntington's disease therapeutics conference 2019 – Day 2
- Huntington's disease therapeutics conference 2019 – Day 1
- Huntington's disease goes viral as UniQure inches ahead in gene therapy race
- Advances on many fronts in the battle against the protein that causes Huntington's disease
- HDSA FAQ on the Roche/Genentech RG6042 program
- Kids sometimes get Huntington’s disease too
- Roche announces details of its 'pivotal' huntingtin-lowering study
- Disappointing news from LEGATO-HD trial of laquinimod in Huntington's disease
- HDBuzz Enrolls in Enroll-HD
- First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed
- New collaboration seeks to speed Huntington's disease drug licensing
- HDSA’s Q&A on the latest huntingtin-lowering update from Ionis and Roche
- Exciting Experiments in "Open Science" by Huntington's Researchers
- The structure of the protein that causes Huntington's disease, revealed
- Huntington's disease therapeutics conference 2018 – day 3
- Huntington's disease therapeutics conference 2018 – day 2
- Huntington's disease therapeutics conference 2018 – day 1
- An early role for the Huntington's disease gene – but don't believe all the headlines
- New interest in an old target
- Ask the expert: Q&A on the huntingtin-lowering trial program
- Success! ASO drug reduces levels of mutant protein in Huntington's disease patients
- Switch off the genome editor when you’re done
- A new way of thinking about trials to prevent Huntington's disease
- Update confirms Huntington's disease 'gene silencing' trial on track
- New roles for huntingtin: removing a healthy protein to understand its function
- Precision huntingtin-lowering drug trials target the mutant protein
- A step forward for gene editing: CRISPR-Cas9 and HD
- New study reveals a potential HD biomarker
- Has a "wonder drug" for dementia been discovered? (Spoiler alert: no.)
- Huntington's Disease Therapeutics Conference 2017 – Day 3
- Huntington's Disease Therapeutics Conference 2017 – Day 2
- Huntington's Disease Therapeutics Conference 2017 – Day 1
- Enemy at the gates – huntingtin disrupts nuclear transport
- FDA approves a new drug for symptoms of Huntington's disease
- Sheep leading the flock: metabolism and biomarkers in HD
- Weeding out the truth: can cannabis improve Huntington’s?
- Huntingtin grabs a hammer: DNA repair in HD
- The benefits of migration, highlighted in Huntington's disease
- Treasure your exceptions – using outliers to understand Huntington's disease onset and progression
- A powerful message: does a toxic RNA message molecule cause harm in Huntington's disease?
- Pfizer Amaryllis trial ends in disappointment: no improvement in Huntington's disease symptoms
- Important advances in next generation genome editing tools for Huntington's Disease
- Sorry folks, the PRIDE-HD trial did NOT show that Pridopidine slows the progression of Huntington's disease
- EuroBuzz 2016: The Euro-HD Network Meeting in The Hague
- Ultra-rare mutations highlight the importance of the HD gene in brain development
- Deutetrabenazine for Huntington's disease: a positive trial but the FDA says no? Not exactly…
- A support system gone wrong – glial cells contribute to HD symptoms
- Slightly long CAG repeats are more common than we thought
- Early exposure to the HD protein may cause life-long symptoms
- Electron beam snaps best images yet of Huntington's disease protein
- Planting trees together: The 2016 Huntington's Disease Society of America Convention
- Huntingtin takes a trip: harmful proteins pass between brain cells
- Important drug targets yielded by new genetic study of HD
- Thinking clearly about the earliest symptoms of HD and which brain regions control them
- How NOT to write a news article about a clinical trial
- Huntington's Disease Therapeutics Conference 2016 – day 2
- Huntington's Disease Therapeutics Conference 2016 – day 3
- Could a new "jaw-dropping" breakthrough help treat Huntington's Disease?
- Huntington's Disease Therapeutics Conference 2016 – day 1
- Harnessing the power of viruses to treat Huntington's disease
- Through a Broader Lens: Looking at Non-Motor Symptoms in HD
- Looking Past the Spin: Results from a Clinical Trial of Cysteamine
- A recycled drug gives us new insight in to HD
- Through the eyes of a friend: changes in mood and behavior in early HD
- A multiple sclerosis drug that works for Huntington's disease: the real deal or too good to be true?
- Mapping the anatomy of HD: a whole-brain history
- Liftoff: First humans treated with gene silencing drugs for HD!
- HDBuzz primer: Clinical trial designs and phases
- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells
- New tool to measure outcomes in Huntington’s Disease clinical trials
- Huge study reveals new 'genetic modifiers' of Huntington's disease
- Would ewe believe it? GM1, sheep and Huntington's disease
- Switching it up: variety in the HD gene affects symptom onset
- Measuring harmful huntingtin protein in the brain’s bath water
- A faulty filter? Blood vessel changes in Huntington's disease
- Lighting the way: A new biomarker for Huntington’s disease
- Novel research technique suggests an antioxidant gene protects vulnerable neurons
- Building a Better Mouse(trap): A New Model of Huntington’s Disease
- Taking new targets to the bank: the DNA repair protein ‘ATM’ is overactive in Huntington's disease
- 2015 Huntington's Disease Therapeutics Conference: Day 3
- 2015 Huntington's Disease Therapeutics Conference: Day 2
- 2015 Huntington's Disease Therapeutics Conference: Day 1
- Unlocking the Potential of Antibodies as a Therapy for Huntington’s Disease
- Drug Improves Huntington’s Symptoms in Mice – and Their Offspring
- mTORC1 tips the scales in Huntington’s disease mice
- Can this synthetic oil help feed the brain in Huntington's disease?
- Positive results announced for re-worked tetrabenazine drug in Huntington's disease
- Turning skin cells into brain cells: a Huntington's disease research breakthrough?
- Huntington's disease clinical trial announcement: huntingtin-lowering drug to enter Phase I trial in 2015
- Largest creatine clinical trial for Huntington's disease halted after 'futility' analysis
- Should we worry about a huntingtin invasion?
- EuroBuzz 2014 Video, day one
- EuroBuzz 2014 Video, day two
- Melatonin alterations in Huntington's disease help explain trouble with sleep
- EuroBuzz 2014: day three
- EuroBuzz 2014: day two
- EuroBuzz 2014: day one
- Going toe-to-toe with tau: new insights into the chemical basis of Huntington’s disease
- New results bring BDNF therapies into focus
- 2CARE study of coenzyme Q for Huntington's disease ends in disappointment
- A starring role for astrocytes in Huntington's disease?
- HD mice provide a useful failure
- Illuminating the progression of Huntington’s disease
- Jumping genes: Huntington's disease protein invades brain transplants
- The brain in Huntington's disease: greater than the sum of its parts?
- NUB1: enhancing clearance to decrease mutant huntingtin
- Could HD be caused by amino acid deficiency?
- Raptor announces results of cysteamine trial for Huntington's disease
- Sleep, cilia and HD
- Huntington's Disease Therapeutics Conference 2014: day 3
- Huntington's Disease Therapeutics Conference 2014: day 2
- Huntington's Disease Therapeutics Conference 2014: day 1
- Prana announces results of Reach2HD trial of PBT2 for Huntington's disease
- Does high-dose creatine "slow the onset" of Huntington's Disease?
- Joint HDBuzz Prizewinner: Yeast studies suggest a new way to protect cells from 'oxidative damage'
- Joint HDBuzz Prizewinner: Pennies for your neurons — copper’s bad influence on Huntington’s disease
- Could a 'brain shuttle' get Huntington's disease drugs to where they're needed?
- Is a new Huntington’s Disease drug study on the right Trk?
- DNA shutdown proteins in Huntington's disease: More than meets the eye
- More evidence points to Huntington's disease exercise benefit
- Do dairy foods accelerate Huntington's disease?
- New study sheds light on regional degeneration in HD
- Buzzilia Video: Day 3
- Buzzilia Video: Day 2
- What the 'big neurodegeneration breakthrough' means for Huntington's disease
- The sweet lowdown: Huntington's disease brains use sugar differently
- Buzzilia Video: Day 1
- Video feature: Huntington's disease research… in space!
- 'Buzzilia' from the Huntington's Disease World Congress: day 4
- 'Buzzilia' from the Huntington's Disease World Congress: day 3
- 'Buzzilia' from the Huntington's Disease World Congress: day 2
- 'Buzzilia' from the Huntington's Disease World Congress: day 1
- Coming soon from the 2013 Huntington's Disease World Congress: Buzzilia!
- Could muscle problems help explain movements in Huntington’s Disease patients?
- The 2013 HDBuzz Prize for Young Science Writers
- Does a 'rusty hinge' cause Huntington's disease?
- How long is too long? Rethinking the Huntington’s disease ‘gray area’
- Can sad mice help treat Huntington's disease?
- Gene silencing drug safe in ALS patients… bring on Huntington's disease trials
- A DNA repair protein modifies the stability of long CAG tracts in the Huntington's disease gene
- Landmark study puts Huntington's disease trials on TRACK
- Splicing with danger: a new way of thinking about the harmful Huntington's disease protein
- Proposed Huntington's disease 'biomarker' is not useful, new study suggests
- Is access to predictive genetic testing for Huntington's disease a problem?
- HD Therapeutics Conference 2013 Updates: Day 3
- HD Therapeutics Conference 2013 Updates: Day 2
- Major Roche-Isis deal boosts Huntington's disease gene silencing
- HD Therapeutics Conference 2013 Updates: Day 1
- Lost in translation? New insights into the making of the Huntington's disease protein
- Simple rules for a good night's sleep in Huntington's disease
- Is a new technique set to revolutionize Huntington's disease genetic testing?
- No surprises in published results from HART study of Huntexil for Huntington's disease
- Liver changes in Huntington's disease patients suggest more 'whole body' research needed
- The 'N17' region of huntingtin protein: an address label in Huntington's disease?
- HDBuzz Special Feature: Huntington's disease and sleep
- The University of New Orleans has NOT discovered a cure for Huntington's disease
- Gone fishing: protein network screen identifies new therapeutic targets in Huntington's disease
- Prana Biotech publishes Huntington's disease animal model data for PBT2
- 'Guard dog' proteins reveal surprising connections between Huntington's disease and other brain disorders
- Dyeing to prevent dying? Methylene blue beneficial in Huntington's disease mice
- Prominent Huntington's disease researcher "fabricated data" in grant applications
- Calming down the immune system helps Huntington's disease mice
- Targeting oxidative stress in Huntington's Disease
- Of mice and men: using animal models to study Huntington's disease
- HDBuzz Prize runner-up 2012: Fruit flies, faulty connections and Huntington's disease
- Illuminating findings in blood cells from Huntington's disease patients
- Giving Huntington's disease the finger? Two teams report success for zinc-finger drugs in cells and mice
- HDBuzz Prize winner 2012: Deep brain stimulation for HD
- Interview: Alice and Nancy Wexler
- Video: What’s new in Huntington's disease research 2012
- Shooting the messenger with single-stranded RNA gene silencing
- EuroBuzz Video: Day 2
- EuroBuzz Video: Day 1
- EuroBuzz News: Day 3
- EuroBuzz News: Day 2
- EuroBuzz News: Day 1
- Coming Soon: EuroBuzz 2012
- Lithium with a twist gets second chance for HD
- High-power brain scans reveal sodium changes in HD
- Mapping the neighborhood: huntingtin's new protein partners
- Does the HD mutation affect children's growth?
- 'Induced' stem cells make exciting advances
- ASO gene silencing reaches further, lasts longer
- Phosphodiesterase inhibitors: new HD drugs entering trials soon
- Interview: CHDI's scientific team
- Exercise increases cellular recycling
- The HDBuzz Prize for young science writers
- What's the connection between Huntington's Disease and cancer?
- Closing the care gap: new guidelines for HD care
- Stem-cell neurons make the right connections
- 2012 Therapeutics Conference: a retrospective
- Mutant yeast highlights crucial CAG-reading protein
- HD Therapeutics Conference 2012 Updates: Day 3
- HD Therapeutics Conference 2012 Updates: Day 2
- HD Therapeutics Conference 2012 Updates: Day 1
- Coming soon: HD Therapeutics Conference 2012
- New analysis suggests 'small' CAG length doesn't matter after all
- Special 'brain fat' injection helps HD mice
- HDYO! Huntington's Disease Youth Organization goes live
- Could mesenchymal stem cells deliver gene silencing drugs?
- Double success for huntingtin RNAi gene silencing
- New experiments clarify the role of SIRT1 in HD – or do they?
- Bone marrow transplantation in Huntington's Disease
- 2011 – a year in Huntington's disease research
- Gene therapy meets stem cells in liver disease success
- Chinese Huntington’s Disease Network launched
- HDAC inhibitor drug protects memory in HD mice
- Turning down the volume with dantrolene helps HD mice
- TRACK-HD reveals changes in HD mutation carriers, empowering future trials
- Huntexil hits the headlines again
- New antibody reveals dangerous parts of huntingtin protein
- Safety trials add crucial piece to gene silencing jigsaw
- Melatonin treatment success in HD mice
- HD World Congress 2011: a retrospective
- HDAC inhibitors and a possible 'blood biomarker'
- HD just got cilia
- Gene silencing takes a targeted step forward
- Prana Biotech's new trial of PBT2 in Huntington's disease: the lowdown
- Oz Buzz Video: Day 2
- Oz Buzz Video: Day 1
- Oz Buzz Updates: Day 3
- Oz Buzz Updates: Day 2
- Oz Buzz Updates: Day 1
- Stand By for Oz Buzz
- Ten golden rules for reading a scientific news story
- Protein-folding drug helps HD mice… for a while
- A back-to-front hidden message in the HD gene?
- Stem cells and HD: past, present and future
- Coming soon from the HD World Congress: Oz Buzz!
- Therapeutics conference videos now online
- Cut-and-paste DNA: fixing mutations with 'genome editing'
- Caffeine, cannabis and caution
- Re-routing the huntingtin protein inside cells
- Not all in your head: digestive problems in HD
- Huntexil update: EMA asks for further trial
- KMO inhibitor drug improves lifespan of Huntington's disease mice
- Meet the enemy: neutron ray reveals HD protein structure
- 'Floating' gene-silencing drugs into the brain with exosomes
- Improving Huntington's disease clinical trial recruitment through patient and family education
- Chubby mice reveal the importance of the hypothalamus in Huntington's disease
- The genetic 'gray area' of Huntington's disease: what does it all mean?
- Dimebon fails in late-stage human HD clinical trial
- FDA: further trial needed for Huntexil approval in HD
- Successful gene therapy trial in Parkinson’s Disease gives hope for HD
- Gene silencing for HD: the story so far
- Interview: Graeme Bilbe, Global Head for Neuroscience at Novartis
- What do sheep brains have to do with HD?
- Interview: CHDI Management
- CHDI Report: Day 3
- CHDI Report: Day 2
- CHDI Report: Day 1
- Anti-nausea drug helps cells with the HD mutation stay healthy in a surprising way
- HDBuzz takes your questions to the annual therapeutics meeting of CHDI
- Welcome to HDBuzz
- Memantine in HD: dose is everything
- An active lifestyle may make a difference to HD symptoms
- Frequently asked questions, January 2011
- Getting the data out – a new scientific journal just for HD
- Dimebon: disappointing in Alzheimer’s but might work in HD
- Focused drug screening leads to improved drugs to increase the rate of cellular recycling
- Does HD cause brains to develop differently?
- Are there genetic connections between neurodegenerative diseases?
- Is Huntington’s disease twice as common as we thought?
- Two large HD observational studies – COHORT and Registry – merge to create ENROLL-HD
- Huntexil for symptoms of Huntington's disease: where are we now?
- Minocycline: the end of the road?
- TRACK-HD reveals significant changes in pre-symptomatic HD mutation carriers and patients
Support
Services
- Carer Gateway
- Other Australian Huntington’s Associations
- IDRS – legal help, advice and services
- Sister Maria Cunningham Centre
- Huntington’s NSW ACT Research grant
- Enroll- HD – Westmead site
- Huntington’s NDIS Support Coordination and Specialist Support Coordination
- Westmead Hospital Huntington’s Disease Outreach Service
- Huntington Disease Service – Westmead Hospital University Clinic
- Music and Social club
- ‘My Voice’ Art club
