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What is Huntingtons

What is Huntingtons  ? (A4 Brochure)

Huntington’s NSW & ACT is proud to provide information and support, research funding, and advocacy for everyone touched by Huntington’s Disease (HD).  

The core belief or our organisation is that we can change perceptions of HD by sharing information.  

This brochure is one easy way that you can help people to understand more about HD and hopefully even start conversations. 

If HD is a part of your life or family, please take the time to share your experiences and knowledge. This brochure is ideal for printing at home or work. It gives a very concise overview of HD, who is at risk, and the impacts. It also has guidance for people thinking about going through genetic testing for HD. 

Leaving a brochure in your work kitchen may not seem like a big deal. But every person who is better informed about HD and its effects is a potential supporter and ally. 

Donations over $2.00 to Huntingtons NSW & ACT are tax deductible.  

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Dancing at the Vatican documentary

An inspirational documentary telling the story of hope for Huntington's Disease families. Showing that if enough people who refuse to give in, come together, anything is possible.

Huntington Study Group education

HSG and its members offer free educational opportunities to providers so they can offer quality care to their patients and families impacted by HD.

Clinical trials: your questions answered

This leaflet has been produced by Roche, in consultation with Huntington’s disease organisations, to provide basic information on clinical trials of medicines.

Carer self-care and wellbeing workshops

Replay the free online webinars and self-care and wellbeing workshops for carers conducted during Carers Week 2020.

A Caregiver’s Handbook for Advanced-Stage Huntington Disease – Pollard, J. (ed.) 1999

The aim of this book is to familiarise carers with Huntington's disease, so that they can recognise its symptoms and know what to expect as it progresses.
It also includes general principles of care and tips that other carers have found useful.

Isolation tips and support for young people and their families 

As everything changes around us day by day, in ways most of us have never experienced before, we are feeling a lot of uncertainty – in our own lives, for our families, friends and for the world in general. In a situation like this, both the known and the unknown can cause increased levels of worry and stress, especially for those in families affected by Huntington’s disease who are already coping with a lot.
Access our Youth Connection counselling services.