1800 244 735

Helpline (02) 9874 9777

Understanding Behaviour in HD

This book was written for health care professionals providing care to people affected by HD. It outlines many of the common behaviour concerns experienced by people living with HD and provides examples, possible causes, and strategies for caregivers. 

Although it was written for health care professionals, it is a good resource for anyone wanting to learn more about behaviour changes related to HD. 

The booklet begins with an overview of HD, its genetics, and stages of the disease. 

The common behaviour concerns covered include: 

– communication 

– learning and memory 

– perception 

– executive function 

– apathy and lack of initiation 

– organisation 

– impulsivity/disinhibition 

– frustration, irritability and anger 

– denial and unawareness 

perserveration (stuck in one idea or activity) 

– depression 

– suicide 

– anxiety 

– psychosis 

– changes in sexuality 

– sleep disturbances. 

You already voted!

Search for more articles




National Conference recordings

In May 2021 Huntington's NSW ACT hosted the national conference. This conference was virtual due to the COVID-19 pandemic. There were four key themes for the conference - achieving quality of care; achieving better policy outcomes; achieving better consumer outcomes; and research update.

Medical ID card

Did you know that we offer free Huntington’s disease identity cards? They provide information on HD and have space for emergency contact details. The cards can be attached to a lanyard to help others understand, or kept in a wallet in case of emergency. If you or someone you love would like a HD ID ... Read more

Carer Emergency care plan

The Carer Gateway have created an electronic template for carer’s to use and the latest version can be accessed here. An emergency care plan makes it easy for someone to take over from you in a hurry. It has all the information about the person you care for in one place, so you can get ... Read more

Dancing at the Vatican documentary

An inspirational documentary telling the story of hope for Huntington's Disease families. Showing that if enough people who refuse to give in, come together, anything is possible.

Huntington Study Group education

HSG and its members offer free educational opportunities to providers so they can offer quality care to their patients and families impacted by HD.

Clinical trials: your questions answered

This leaflet has been produced by Roche, in consultation with Huntington’s disease organisations, to provide basic information on clinical trials of medicines.