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Understanding Behaviour in HD

This book was written for health care professionals providing care to people affected by HD. It outlines many of the common behaviour concerns experienced by people living with HD and provides examples, possible causes, and strategies for caregivers. 

Although it was written for health care professionals, it is a good resource for anyone wanting to learn more about behaviour changes related to HD. 

The booklet begins with an overview of HD, its genetics, and stages of the disease. 

The common behaviour concerns covered include: 

– communication 

– learning and memory 

– perception 

– executive function 

– apathy and lack of initiation 

– organisation 

– impulsivity/disinhibition 

– frustration, irritability and anger 

– denial and unawareness 

perserveration (stuck in one idea or activity) 

– depression 

– suicide 

– anxiety 

– psychosis 

– changes in sexuality 

– sleep disturbances. 

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WORDS AMY HALE
As everything changes around us day by day, in ways most of us have never experienced before, we are feeling a lot of uncertainty – in our own lives, for our families, friends and for the world in general. In a situation like this, both the known and the unknown can cause increased levels of worry and stress, especially for those in families affected by Huntington’s disease who are already coping with a lot.
Access our Youth Connection counselling services.