Archives: Resource

Presymptomatic Testing – The Consumer Experience  This booklet provides firsthand experience from three people about their decision to either test or not test for the HD gene.  Genetic testing is not for everybody. Each person has the right to make their own decision. Reading the stories shared in this booklet may help you to make … Read more

 Coping with Loss and Grief  This booklet summarises a number of activities that have been recommended by experts in grieving. You may be able to use these to help you come to terms with feelings of loss and grief related to HD.   Grief has many symptoms which can be physical, emotional and behavioural. It can … Read more