HD Insights Podcast Series
A Huntington’s Study Group education initiative, subscribe today
Archives: Resource
Resources
DISABILITY Royal Commission
Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability
NDIS: Moving from home into residential aged care
WORDS: GISELLE BEAUMONT
Q.) My dad has turned 65, and he is currently living at home. Will he still receive support through the National Disability Insurance Scheme (NDIS) when he moves into residential aged care?
What is advocacy?
WORDS: LEWIS KAPLANAll the latest advice and developments on how to advocate in today’s system
NDIS planning
NDIS planning This workbook has been written for people with HD who are eligible to be an NDIS participant. The National Disability Insurance Scheme provides funding support to allow people living with HD to live the life they want. To access the scheme, your NDIS planner will need to understand your needs. Working through this … Read more
What is Huntington’s disease (HD)?
Huntington’s disease (HD) is an inherited, relentlessly degenerative brain disorder with physical, cognitive and emotional symptoms. It affects both males and females and symptoms usually begin to appear between 30 and 50 years of age. Less commonly, HD may develop in youth (under 20 years – Juvenile HD) or older adults (Late Onset HD). HD … Read more
Understanding Behaviour in HD
This book was written for health care professionals providing care to people affected by HD. It outlines many of the common behaviour concerns experienced by people living with HD and provides examples, possible causes, and strategies for caregivers. Although it was written for health care professionals, it is a good resource for anyone wanting to … Read more
Genetic testing
Huntington’s Disease and Genetic Testing This booklet is a good starting point for anyone who is considering genetic testing for HD. It provides information for people who have been diagnosed with HD or who have a history of HD in their family. It outlines the genetic process (how HD is passed on in families) and … Read more
Huntington’s Disease
Huntington’s Disease (HD Book Pink 2013) This is a general introduction to Huntington’s Disease (HD). It provides information for anyone interested in finding out more about HD, including people living with HD and their families and friends. Living with HD presents many challenges and these are unique to every person and family. Keep that in … Read more
What is Huntingtons
What is Huntingtons ? (A4 Brochure) Huntington’s NSW & ACT is proud to provide information and support, research funding, and advocacy for everyone touched by Huntington’s Disease (HD). The core belief or our organisation is that we can change perceptions of HD by sharing information. This brochure is one easy way that you can help … Read more
