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Huntington Study Group education

Individuals with Huntington disease (HD) and their family members need the expertise of clinicians specializing in neurology, movement disorders, psychiatry, mental health, genetics, and palliative care, as well as ancillary and primary care providers at some point during the complex and progressive course of the disease.

Because the disease is so rare, little dedicated attention is given to HD disease in standard medical education programs, and knowledgeable providers can be difficult for families to access.

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WORDS: Huntington Study Group education

Free education and assists professionals with credits toward their Continued Professional Development (CPD) points.

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National Conference recordings

In May 2021 Huntington's NSW ACT hosted the national conference. This conference was virtual due to the COVID-19 pandemic. There were four key themes for the conference - achieving quality of care; achieving better policy outcomes; achieving better consumer outcomes; and research update.

Medical ID card

Did you know that we offer free Huntington’s disease identity cards? They provide information on HD and have space for emergency contact details. The cards can be attached to a lanyard to help others understand, or kept in a wallet in case of emergency. If you or someone you love would like a HD ID ... Read more

Carer Emergency care plan

The Carer Gateway have created an electronic template for carer’s to use and the latest version can be accessed here. An emergency care plan makes it easy for someone to take over from you in a hurry. It has all the information about the person you care for in one place, so you can get ... Read more

Dancing at the Vatican documentary

An inspirational documentary telling the story of hope for Huntington's Disease families. Showing that if enough people who refuse to give in, come together, anything is possible.

Huntington Study Group education

HSG and its members offer free educational opportunities to providers so they can offer quality care to their patients and families impacted by HD.

Clinical trials: your questions answered

This leaflet has been produced by Roche, in consultation with Huntington’s disease organisations, to provide basic information on clinical trials of medicines.