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HD Insights Podcast Series

A Huntington’s Study Group education initiative

The HD Insights Podcast is a long-form interview format in which we speak with researchers in Huntington disease and those helping shape the future of HD treatments. New episodes are released on a periodic basis to help supplement our semi-annual printed edition of HD Insights. The goal of the podcast is to provide further in-depth insights about the people working on treatments that make a difference for those impacted by HD, and to share the interesting stories about their journey.

To listen on Apple iTunes, go to https://podcasts.apple.com/us/podcast/hd-insights-podcast/id1478478065

To listen through Google Play, go to https://play.google.com/music/m/Ik55gxjmvmx67nsjkqz5qbyzxh4?t=HD_Insights_Podcast

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National Conference recordings

In May 2021 Huntington's NSW ACT hosted the national conference. This conference was virtual due to the COVID-19 pandemic. There were four key themes for the conference - achieving quality of care; achieving better policy outcomes; achieving better consumer outcomes; and research update.

Medical ID card

Did you know that we offer free Huntington’s disease identity cards? They provide information on HD and have space for emergency contact details. The cards can be attached to a lanyard to help others understand, or kept in a wallet in case of emergency. If you or someone you love would like a HD ID ... Read more

Carer Emergency care plan

The Carer Gateway have created an electronic template for carer’s to use and the latest version can be accessed here. An emergency care plan makes it easy for someone to take over from you in a hurry. It has all the information about the person you care for in one place, so you can get ... Read more

Dancing at the Vatican documentary

An inspirational documentary telling the story of hope for Huntington's Disease families. Showing that if enough people who refuse to give in, come together, anything is possible.

Huntington Study Group education

HSG and its members offer free educational opportunities to providers so they can offer quality care to their patients and families impacted by HD.

Clinical trials: your questions answered

This leaflet has been produced by Roche, in consultation with Huntington’s disease organisations, to provide basic information on clinical trials of medicines.