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HD Insights Podcast Series

A Huntington’s Study Group education initiative

The HD Insights Podcast is a long-form interview format in which we speak with researchers in Huntington disease and those helping shape the future of HD treatments. New episodes are released on a periodic basis to help supplement our semi-annual printed edition of HD Insights. The goal of the podcast is to provide further in-depth insights about the people working on treatments that make a difference for those impacted by HD, and to share the interesting stories about their journey.

To listen on Apple iTunes, go to https://podcasts.apple.com/us/podcast/hd-insights-podcast/id1478478065

To listen through Google Play, go to https://play.google.com/music/m/Ik55gxjmvmx67nsjkqz5qbyzxh4?t=HD_Insights_Podcast

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Dancing at the Vatican documentary

Dancing at the Vatican is an inspirational documentary telling the story of a seemingly impossible journey made by families bound by the same devastating, genetically inherited disease, Huntington's. The film captures this pivotal moment of hope for Huntington's Disease families in a film that will lift spirits after the ravages of 2020; showing that if enough people who refuse to give in, come together, anything is possible.

Huntington Study Group education

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This leaflet has been produced by Roche, in consultation with Huntington’s disease organisations, to provide basic information on clinical trials of medicines.

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Read our HD News Spring 2020 edition.

National Carers Week 2020

Replay the free online webinars and self-care and wellbeing workshops for carers conducted during Carers Week 2020.

A Caregiver’s Handbook for Advanced-Stage Huntington Disease – Pollard, J. (ed.) 1999

The aim of this book is to familiarise carers with Huntington's disease, so that they can recognise its symptoms and know what to expect as it progresses.
It also includes general principles of care and tips that other carers have found useful.