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HD Insights Podcast Series

A Huntington’s Study Group education initiative

The HD Insights Podcast is a long-form interview format in which we speak with researchers in Huntington disease and those helping shape the future of HD treatments. New episodes are released on a periodic basis to help supplement our semi-annual printed edition of HD Insights. The goal of the podcast is to provide further in-depth insights about the people working on treatments that make a difference for those impacted by HD, and to share the interesting stories about their journey.

To listen on Apple iTunes, go to https://podcasts.apple.com/us/podcast/hd-insights-podcast/id1478478065

To listen through Google Play, go to https://play.google.com/music/m/Ik55gxjmvmx67nsjkqz5qbyzxh4?t=HD_Insights_Podcast

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Dancing at the Vatican documentary

An inspirational documentary telling the story of hope for Huntington's Disease families. Showing that if enough people who refuse to give in, come together, anything is possible.

Huntington Study Group education

HSG and its members offer free educational opportunities to providers so they can offer quality care to their patients and families impacted by HD.

Clinical trials: your questions answered

This leaflet has been produced by Roche, in consultation with Huntington’s disease organisations, to provide basic information on clinical trials of medicines.

Carer self-care and wellbeing workshops

Replay the free online webinars and self-care and wellbeing workshops for carers conducted during Carers Week 2020.

A Caregiver’s Handbook for Advanced-Stage Huntington Disease – Pollard, J. (ed.) 1999

The aim of this book is to familiarise carers with Huntington's disease, so that they can recognise its symptoms and know what to expect as it progresses.
It also includes general principles of care and tips that other carers have found useful.

Isolation tips and support for young people and their families 

As everything changes around us day by day, in ways most of us have never experienced before, we are feeling a lot of uncertainty – in our own lives, for our families, friends and for the world in general. In a situation like this, both the known and the unknown can cause increased levels of worry and stress, especially for those in families affected by Huntington’s disease who are already coping with a lot.
Access our Youth Connection counselling services.