1800 244 735

Helpline (02) 9874 9777

Coping with Loss and Grief 

 Coping with Loss and Grief 

This booklet summarises a number of activities that have been recommended by experts in grieving. You may be able to use these to help you come to terms with feelings of loss and grief related to HD.  

Grief has many symptoms which can be physical, emotional and behavioural. It can be helpful to acknowledge these symptoms and understand where they come from and why. The booklet describes the different types and stages of grief, and outlines some things you can do which may help you during the grieving process. 

This booklet covers: 

– the different types of grief (physical, emotional, behavioural) 

– the different stages of grief 

– grief management activities and strategies 

– what to do and what to avoid while grieving 

– when to seek professional help 

– losses other than death (independence, stability, etc) 

– family members not at risk of HD 

– moving beyond grief 

– recommended resources. 

 

You already voted!
Share on facebook
Share on twitter
Share on pinterest
Share on email

Search for more articles

Audience

Topics

RESULTS FILTERED BY:

Dancing at the Vatican documentary

An inspirational documentary telling the story of hope for Huntington's Disease families. Showing that if enough people who refuse to give in, come together, anything is possible.

Huntington Study Group education

HSG and its members offer free educational opportunities to providers so they can offer quality care to their patients and families impacted by HD.

Clinical trials: your questions answered

This leaflet has been produced by Roche, in consultation with Huntington’s disease organisations, to provide basic information on clinical trials of medicines.

Carer self-care and wellbeing workshops

Replay the free online webinars and self-care and wellbeing workshops for carers conducted during Carers Week 2020.

A Caregiver’s Handbook for Advanced-Stage Huntington Disease – Pollard, J. (ed.) 1999

The aim of this book is to familiarise carers with Huntington's disease, so that they can recognise its symptoms and know what to expect as it progresses.
It also includes general principles of care and tips that other carers have found useful.

Isolation tips and support for young people and their families 

WORDS AMY HALE
As everything changes around us day by day, in ways most of us have never experienced before, we are feeling a lot of uncertainty – in our own lives, for our families, friends and for the world in general. In a situation like this, both the known and the unknown can cause increased levels of worry and stress, especially for those in families affected by Huntington’s disease who are already coping with a lot.
Access our Youth Connection counselling services.