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Carer self-care and wellbeing workshops

To celebrate carers and recognise the significant contribution carers make each and every day, Carers NSW host a range of online wellbeing workshops and webinars during National Carers Week, in October each year.

Carers from across NSW are invited to join a range of free online webinars and self-care and wellbeing workshops for carers during Carers Week.

  • 2022 – October 16 to 22
  • 2021 – October 10 to 16
  • 2020 – October 18 to 24

To find out more about webinars, workshops and training for carers – click here for details.

To read up on National Carers Week and the grants available – click here for details.

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National Conference recordings

In May 2021 Huntington's NSW ACT hosted the national conference. This conference was virtual due to the COVID-19 pandemic. There were four key themes for the conference - achieving quality of care; achieving better policy outcomes; achieving better consumer outcomes; and research update.

Medical ID card

Did you know that we offer free Huntington’s disease identity cards? They provide information on HD and have space for emergency contact details. The cards can be attached to a lanyard to help others understand, or kept in a wallet in case of emergency. If you or someone you love would like a HD ID ... Read more

Carer Emergency care plan

The Carer Gateway have created an electronic template for carer’s to use and the latest version can be accessed here. An emergency care plan makes it easy for someone to take over from you in a hurry. It has all the information about the person you care for in one place, so you can get ... Read more

Dancing at the Vatican documentary

An inspirational documentary telling the story of hope for Huntington's Disease families. Showing that if enough people who refuse to give in, come together, anything is possible.

Huntington Study Group education

HSG and its members offer free educational opportunities to providers so they can offer quality care to their patients and families impacted by HD.

Clinical trials: your questions answered

This leaflet has been produced by Roche, in consultation with Huntington’s disease organisations, to provide basic information on clinical trials of medicines.