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Welcome to HDBuzz

HDBuzz is now live! Your source for Huntington’s disease research news, in plain language, written by scientists, for the global HD community. Reliable, impartial and free to share, HDBuzz will bring you solid reasons to have hope, by explaining latest news from the worldwide effort to find effective treatments for HD.

Welcome to HDBuzz

It’s our great pleasure to announce the launch of HDBuzz, a new Internet platform for the latest news about Huntington’s disease research in plain language, written by scientists who work on HD. HDBuzz is dedicated to the people who need it most – those affected by HD and their family and friends.

Huntington’s disease research news

HDBuzz will give the global HD community free access to reliable, unbiased articles that reveal and explain the amazing, cutting-edge science that’s happening in labs and clinics around the world. You can expect a story or two a week, focused on particularly exciting developments in both clinical and basic research. Also look for in-depth coverage of HD scientific conferences and other events of interest to the community.

In plain language

HDBuzz will give you access to cutting-edge science, because we believe that all scientific progress can be explained in a way that allows non-scientists to understand it – in fact, we believe that no scientific work is complete until it’s been understood by the people it concerns.

HDBuzz is an experiment, and we need to know from you how we’re doing. If an article didn’t make sense, click the ‘Didn’t understand’ button and tell us how we can improve our content. If you like an article, click the ‘enjoyed’ button to let us know.

On the hdbuzz.net site, glossary pop-ups will explain any technical terms we have to use.

Written by scientists

HDBuzz writers and editors are qualified scientists and clinicians involved in the global effort to find treatments for HD. To remain independent, writers never report on their own research, and every writer completes a ‘conflicts of interest’ statement for each article.

You can find out about the HDBuzz team via the ‘About’ section.

For the global HD community

HDBuzz is the result of an exciting collaboration between many people all over the world, and we want our content to reach as far as possible. HD knows no cultural boundaries, and neither should access to information about HD.

HDBuzz is funded by a unique consortium of HD patient organizations. Our major supporters are the Huntington’s Disease Society of America, Huntington’s Disease Association of England and Wales and the Huntington Society of Canada and we hope to welcome more global HD organizations to the consortium during 2011.

We aim to make all HDBuzz content available in as many languages as possible. We are launching in English and Spanish, and hope to add French, German and Dutch in the very near future.

Where to find us

You’ll be able to access all HDBuzz content via our web site, hdbuzz.net, and articles will also be syndicated to the HD community sites you already use – like hdsa.org, hda.org.uk and huntingtonsociety.ca where we hope they’ll provoke lively, informed debate.

HDBuzz has news feeds to the major social networking sites so you can follow HDBuzzFeed on Twitter, Facebook or Google Buzz. You can also get updates by email.

And if you have a web page or blog, you can freely use HDBuzz content automatically via RSS or reproduce specific articles you like. See our sharing page, within the about section, for full details.

Hope through knowledge

It is a very exciting time for HD research – in the coming months and years, we expect real progress towards effective treatments for this disease we’re all united to fight.

We look forward to bringing that excitement to you, and giving you solid reasons to have real hope, through HDBuzz.

Latest Research Articles

Two birds, one stone: HTT-lowering drugs also target CAG expansions

Published date: 21 May, 2024

Huntingtin (HTT)-lowering and somatic expansion have been two of the hottest topics in Huntington’s disease (HD) research in the past decade. Recent work from a team at Massachusetts General Hospital detailed a serendipitous overlap between the two – certain HTT-lowering drugs can also help regulate the ongoing CAG repeat expansion. Seemingly, this could allow researchers ... Read more

Hats off to brain donors on Brain Donation Awareness Day

Published date: 7 May, 2024

If you’re a frequent reader of HDBuzz, you may have noticed that our articles increasingly thank Huntington’s disease (HD) families for their generous and selfless brain donations. That’s because more and more research is making use of human brains, leading to a better understanding of HD in people. All of that is only possible because ... Read more

A sprinkling of good news for the treatment of HD chorea

Published date: 3 May, 2024

We wrote in August of 2023 about the US approval of a new drug to treat chorea, the movement symptoms of HD. That drug, valbenazine, commercially known as INGREZZA, has just been approved in a new format, one that can be added to soft foods. This news deserves a brief HDBuzz mention. Chorea control Valbenazine ... Read more

A new era for HDBuzz

Published date: 1 May, 2024

HDBuzz strives to be an honest and neutral source of information that Huntington’s disease (HD) families can turn to for trusted, unbiased reporting on research and clinical trial news. We’re honored to have become a global resource for the HD community over the years (14!) and we look forward to building upon the original mission ... Read more

How many is too many? Exploring the toxic CAG threshold in the Huntington’s disease brain

Published date: 21 April, 2024

Drug hunters have been particularly interested in the repeating C-A-G letters of genetic code that lead to Huntington’s disease (HD). The number of CAG repeats gets bigger in vulnerable brain cells over time and may hold the key for slowing or stopping HD. Many scientists have been asking what happens to HD symptoms if we ... Read more

Cry your eyes out: detecting huntingtin in tears

Published date: 10 April, 2024

A recently published collaboration between academic researchers and pharmaceutical companies was successful at detecting huntingtin in tears. The scientists were looking for a new, easy way to track Huntington’s disease (HD). If you don’t mind shedding a tear or two, they found it! Biomarkers – biological metrics in tune with disease progression Tracking disease progression ... Read more