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Welcome to HDBuzz

HDBuzz is now live! Your source for Huntington’s disease research news, in plain language, written by scientists, for the global HD community. Reliable, impartial and free to share, HDBuzz will bring you solid reasons to have hope, by explaining latest news from the worldwide effort to find effective treatments for HD.

Welcome to HDBuzz

It’s our great pleasure to announce the launch of HDBuzz, a new Internet platform for the latest news about Huntington’s disease research in plain language, written by scientists who work on HD. HDBuzz is dedicated to the people who need it most – those affected by HD and their family and friends.

Huntington’s disease research news

HDBuzz will give the global HD community free access to reliable, unbiased articles that reveal and explain the amazing, cutting-edge science that’s happening in labs and clinics around the world. You can expect a story or two a week, focused on particularly exciting developments in both clinical and basic research. Also look for in-depth coverage of HD scientific conferences and other events of interest to the community.

In plain language

HDBuzz will give you access to cutting-edge science, because we believe that all scientific progress can be explained in a way that allows non-scientists to understand it – in fact, we believe that no scientific work is complete until it’s been understood by the people it concerns.

HDBuzz is an experiment, and we need to know from you how we’re doing. If an article didn’t make sense, click the ‘Didn’t understand’ button and tell us how we can improve our content. If you like an article, click the ‘enjoyed’ button to let us know.

On the hdbuzz.net site, glossary pop-ups will explain any technical terms we have to use.

Written by scientists

HDBuzz writers and editors are qualified scientists and clinicians involved in the global effort to find treatments for HD. To remain independent, writers never report on their own research, and every writer completes a ‘conflicts of interest’ statement for each article.

You can find out about the HDBuzz team via the ‘About’ section.

For the global HD community

HDBuzz is the result of an exciting collaboration between many people all over the world, and we want our content to reach as far as possible. HD knows no cultural boundaries, and neither should access to information about HD.

HDBuzz is funded by a unique consortium of HD patient organizations. Our major supporters are the Huntington’s Disease Society of America, Huntington’s Disease Association of England and Wales and the Huntington Society of Canada and we hope to welcome more global HD organizations to the consortium during 2011.

We aim to make all HDBuzz content available in as many languages as possible. We are launching in English and Spanish, and hope to add French, German and Dutch in the very near future.

Where to find us

You’ll be able to access all HDBuzz content via our web site, hdbuzz.net, and articles will also be syndicated to the HD community sites you already use – like hdsa.org, hda.org.uk and huntingtonsociety.ca where we hope they’ll provoke lively, informed debate.

HDBuzz has news feeds to the major social networking sites so you can follow HDBuzzFeed on Twitter, Facebook or Google Buzz. You can also get updates by email.

And if you have a web page or blog, you can freely use HDBuzz content automatically via RSS or reproduce specific articles you like. See our sharing page, within the about section, for full details.

Hope through knowledge

It is a very exciting time for HD research – in the coming months and years, we expect real progress towards effective treatments for this disease we’re all united to fight.

We look forward to bringing that excitement to you, and giving you solid reasons to have real hope, through HDBuzz.

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Latest Research Articles

Treatment for neurological disorder could be repurposed for Huntington’s disease patients

Published date: 22 October, 2020

While developing a drug called branaplam for patients with SMA, the pharmaceutical company Novartis discovered that it could hold promise for people with HD. The FDA has granted a special status called Orphan Drug Designation to branaplam. An existing drug…for huntingtin lowering? The pharmaceutical company Novartis has announced that the U.S. Food and Drug Administration ... Read more Treatment for neurological disorder could be repurposed for Huntington’s disease patients

Updates from the EHDN Plenary Meeting 2020

Published date: 9 October, 2020

In September, the European Huntington’s Disease Network (EHDN) hosted a virtual webinar event which comprised presentations on some of the latest scientific research as well as clinical studies of Huntington’s disease (HD). Researchers, doctors, patients and other interested folks, tuned in for an afternoon of talks as well as question and answer sessions to learn ... Read more Updates from the EHDN Plenary Meeting 2020

Sad news from the SIGNAL study: pepinemab does not influence HD symptoms

Published date: 23 September, 2020

The SIGNAL clinical trial was designed to test a drug called pepinemab in people with early Huntington’s disease. The key results of that trial were recently announced, and unfortunately, pepinemab did not slow or improve HD symptoms as hoped. What was the SIGNAL trial, and who participated? The SIGNAL trial was launched in 2015 by ... Read more Sad news from the SIGNAL study: pepinemab does not influence HD symptoms

When genes are unstable: targeting somatic instability in HD

Published date: 8 September, 2020

What is somatic instability? We tend to think of DNA as a fixed blueprint, an overarching plan for the biological bricks and bridges that constitute our cells, organs, and bodies. But like any good plan, DNA is actually dynamic and adaptable. It gets frequent use as a template for creating the RNA messages that pave ... Read more When genes are unstable: targeting somatic instability in HD

Working as a team: Changes in brain development mean some brain regions may be slacking off

Published date: 17 August, 2020

The effect of the HD genetic expansion on brain development has been a hot topic in HD research. A team of researchers led by Dr. Sandrine Humbert at the Grenoble Institut Neurosciences, examined human fetal tissue to show that the mutant HD gene causes very early changes in the patterns of early brain development. But ... Read more Working as a team: Changes in brain development mean some brain regions may be slacking off

Caution urged for the use of gene-editing technology CRISPR

Published date: 12 August, 2020

A gene-editing tool known as CRISPR has been heralded as a breakthrough technology for scientists in the lab but also as a potential strategy to treat numerous genetic diseases, including Huntington’s. But a series of recent studies has suggested that CRISPR is less precise than previously thought, leading to unintended changes in the genome. Three ... Read more Caution urged for the use of gene-editing technology CRISPR

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