Coming soon from the 2013 Huntington's Disease World Congress: Buzzilia!

Jeff Carroll and Ed Wild will be reporting on the hottest science news from the 2013 World Congress on Huntington’s Disease in Rio de Janeiro, from Sunday 15th to Wednesday 18th September, in a special feature we’re calling Buzzilia!

The World Congress on Huntington’s Disease

The World Congress on Huntington’s Disease is the biggest regular meeting of people affected by Huntington’s disease, family members, friends, carers, scientists and health professionals. This year, for the first time ever, it’s being held in Latin America – in Rio de Janeiro, Brazil.

South American families, especially those in Venezuela, were crucial to the discovery of the genetic cause of HD and the disease remains more common there than elsewhere. In recent years, great strides have been made in Latin America for HD-affected people – including the establishment of the South American HD Network, the Red Latino-Americana de Huntington (RLAH) and a big upsurge in research activity. So it’s great to see the World Congress head there for the first time.

The HD World Congress is a unique opportunity for the global Huntington’s disease community to come together and for people to learn from each other and share news, progress and excitement.

For family members, it’s a great opportunity to hear directly about the latest progress towards treatments for HD, to meet scientists who are working on HD, and to find out what’s working, what’s not and what might be around the corner. Chat to your favorite researcher and thank them – or tell them to hurry up!

For scientists and care professionals, it’s a valuable time to get to know HD family members and hear about their lives. It is incredibly motivating for scientists to meet the people their work is trying to help.

Announcing … Buzzilia!

We’re excited to announce that your HDBuzz editors-in-chief, Dr Jeff Carroll and Dr Ed Wild, will be presenting a nightly feature at the World Congress. In keeping with a now-established tradition of terrible puns – remember Oz Buzz and EuroBuzz? – we’re calling this year’s coverage Buzzilia!

Buzzilia will bring you all the hottest science news from the World Congress, with the HDBuzz ethos: the latest research news – brought to you by scientists – in plain language – for the global HD community.

We’ll be joined by special guests for interviews, news reports and some more light-hearted features that will inform and entertain.

Buzzilia is supported by the World Congress Organizing Committee and our funding partners.

Of course, not everyone can make it to Rio. So to emphasize the truly global nature of the HD Community, we’ll again be using internet and social media to connect with the hundreds of thousands of HD-affected people around the globe.

We’ll be posting news updates every day of the Congress at HDBuzz.net, and full video of our coverage online shortly afterwards. But if you don’t want to miss a thing, follow HDBuzzFeed on Twitter.

We look forward to seeing you in Rio, or having you join us online for a week of exciting news updates from the World Congress.

Share on facebook
Share on twitter
Share on pinterest
Share on email

Latest Research Articles

HD and Histamines: Targeting Hybrid Receptors to Quiet Stressful Brain Talk

Published date: 15 July, 2020

Dopamine is an important chemical messenger in the brain that becomes imbalanced in Huntington’s disease. Researchers recently described a creative way to restore the balance and treat symptoms in HD mice, using an antihistamine drug that acts on hybrid dopamine receptors. It’s an innovative approach to HD therapeutics, but don’t start reaching for allergy meds ... Read more HD and Histamines: Targeting Hybrid Receptors to Quiet Stressful Brain Talk

Changing jobs: converting other cell types into neurons

Published date: 23 June, 2020

Researchers have known for quite some time that HD causes a progressive loss of neurons. But what if we could find a way to fill their place? In a new report, researchers used an intriguing strategy in living mice to do just that – they converted a different type of brain cell into neurons, with ... Read more Changing jobs: converting other cell types into neurons

HD Young Adult Study defines the sweet spot: symptom-free with measurable changes

Published date: 27 May, 2020

A new study headed up by Dr. Sarah Tabrizi, a pioneer in HD research, assessed pre-manifest HD young adults many years from predicted symptom onset with a battery of clinical tests. The goal of this study was to identify a sweet spot – a time when HD participants weren’t experiencing any observable symptoms, but when ... Read more HD Young Adult Study defines the sweet spot: symptom-free with measurable changes

Fountain of youth: HTT protein repairs neurons by maintaining youthful state

Published date: 13 May, 2020

A team of scientists has recently published their findings on how our bodies are able to repair brain and spinal cord injuries. They found that the huntingtin protein plays an important role in repairing damaged nerve cells. Repairing nervous system damage – the holy grail of medical science It has long been the ambition of ... Read more Fountain of youth: HTT protein repairs neurons by maintaining youthful state
Light and sleep

Light and Sleep

Published date: 7 April, 2020

Light & sleep Neurofilament Light Protein and Lifestyle Factors Commentary Words Dr Travis Cruickshank and Dr Danielle Bartlett

What does COVID-19 mean for Huntington’s disease families and HD research?

Published date: 6 April, 2020

COVID-19, short for coronavirus disease 2019, has taken the world by storm in almost every sense – many people have been infected with the SARS-CoV-2 virus, it’s created shopping pandemonium in stores, and many people are isolated at home. But behind that frenzied storm, scientists around the world have been working tirelessly to move research ... Read more What does COVID-19 mean for Huntington’s disease families and HD research?

Welcome to our new website!

Please bear with us while we iron out the last minute wrinkles! If you have any feedback about our new site, please fill out the form below.