1800 244 735

Helpline (02) 9874 9777

Coming soon from the 2013 Huntington's Disease World Congress: Buzzilia!

Jeff Carroll and Ed Wild will be reporting on the hottest science news from the 2013 World Congress on Huntington’s Disease in Rio de Janeiro, from Sunday 15th to Wednesday 18th September, in a special feature we’re calling Buzzilia!

The World Congress on Huntington’s Disease

The World Congress on Huntington’s Disease is the biggest regular meeting of people affected by Huntington’s disease, family members, friends, carers, scientists and health professionals. This year, for the first time ever, it’s being held in Latin America – in Rio de Janeiro, Brazil.

South American families, especially those in Venezuela, were crucial to the discovery of the genetic cause of HD and the disease remains more common there than elsewhere. In recent years, great strides have been made in Latin America for HD-affected people – including the establishment of the South American HD Network, the Red Latino-Americana de Huntington (RLAH) and a big upsurge in research activity. So it’s great to see the World Congress head there for the first time.

The HD World Congress is a unique opportunity for the global Huntington’s disease community to come together and for people to learn from each other and share news, progress and excitement.

For family members, it’s a great opportunity to hear directly about the latest progress towards treatments for HD, to meet scientists who are working on HD, and to find out what’s working, what’s not and what might be around the corner. Chat to your favorite researcher and thank them – or tell them to hurry up!

For scientists and care professionals, it’s a valuable time to get to know HD family members and hear about their lives. It is incredibly motivating for scientists to meet the people their work is trying to help.

Announcing … Buzzilia!

We’re excited to announce that your HDBuzz editors-in-chief, Dr Jeff Carroll and Dr Ed Wild, will be presenting a nightly feature at the World Congress. In keeping with a now-established tradition of terrible puns – remember Oz Buzz and EuroBuzz? – we’re calling this year’s coverage Buzzilia!

Buzzilia will bring you all the hottest science news from the World Congress, with the HDBuzz ethos: the latest research news – brought to you by scientists – in plain language – for the global HD community.

We’ll be joined by special guests for interviews, news reports and some more light-hearted features that will inform and entertain.

Buzzilia is supported by the World Congress Organizing Committee and our funding partners.

Of course, not everyone can make it to Rio. So to emphasize the truly global nature of the HD Community, we’ll again be using internet and social media to connect with the hundreds of thousands of HD-affected people around the globe.

We’ll be posting news updates every day of the Congress at HDBuzz.net, and full video of our coverage online shortly afterwards. But if you don’t want to miss a thing, follow HDBuzzFeed on Twitter.

We look forward to seeing you in Rio, or having you join us online for a week of exciting news updates from the World Congress.

Latest Research Articles

Update on the PTC Therapeutics PIVOT-HD Trial

Published date: 2 November, 2022

Recruitment of participants into the US arm of the PTC Therapeutics PIVOT-HD trial has been paused. Since this announcement, there have been a lot of different (and confusing!) headlines about the pause in recruitment. In this article, we will lay out what is going on and what this announcement means. What is the aim of ... Read more

Forward momentum for Roche and Wave in latest news about huntingtin-lowering trials

Published date: 30 September, 2022

In the past week or so, during and following a big HD research conference, two companies developing medicines for Huntington’s disease announced news about their huntingtin-lowering drugs. First, the pharmaceutical company Roche announced plans for a new clinical trial of tominersen. Then, the genetic medicines company Wave Life Sciences shared early data showing that its ... Read more

Focusing in on fibrils; scientists give us a glimpse of huntingtin protein clumps

Published date: 8 September, 2022

A group of scientists from the EPFL in Lausanne, Switzerland have published a paper in the Journal of the American Chemical Society, describing clumps made up of a fragment of the huntingtin protein. A word that’s commonly used to describe these is “aggregates.” Using very powerful microscopes, the team was able to zoom in and ... Read more

Hereditary Disease Foundation (HDF) conference 2022 – Day 4

Published date: 2 September, 2022

DNA repair and CAG repeat instability The effect of HTT lowering on CAG repeat expansions Welcome to last day of the @hdfcures conference! We’ll only be sharing a few talks from today’s sessions, which focus on DNA repair. The first is from HDBuzz’s very own Jeff Carroll! Jeff will be sharing his work on HTT ... Read more

Hereditary Disease Foundation (HDF) conference 2022 – Day 3

Published date: 1 September, 2022

Pre-clinical work moving toward trials New tools to lower HTT showing promise in animal models Welcome back! The first talk we will be tweeting about today is from Anastasia Khvorova, who will be telling us about her teams work on lowering of Huntingtin using technology called RNAi. One of the problems in studying drug delivery ... Read more

Hereditary Disease Foundation (HDF) conference 2022 – Day 2

Published date: 31 August, 2022

We’re back for day 2 at @hdfcures! This morning’s talks will be focused on clinical trial planning and therapeutic updates from clinical studies. The sheer number of talks related to human trials compared to previous years is so encouraging! Updating metrics for clinical trials A better system for disease categorization The first talk of this ... Read more