1800 244 735

Helpline (02) 9874 9777

PGT to start 1st November

Great News! PGT funding will commence on 1 November 2021.

The Hon Greg Hunt, Minister for Health and Aged Care, responded to a letter sent by Katy Clymo, our Chair, to notify us of this terrific news. Here is the confirmation from Minister Hunt “Five new Medicare items will be available for testing embryos to detect specific genetic or chromosomal abnormalities prior to implantation and pregnancy.”

Read the letter here.

To find out more information please speak with your local genetic counselling service.

https://www.genetics.edu.au/genetic-services/general-genetics-clinics 

 

Latest News and Stories

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HD News Winter 2022

Published date: 1 August, 2022

This is your downloadable copy of the HD News Winter 2022 edition. In this edition you'll be able to read up on the Walk 4 Hope and how to register, HDNA and the map-HD registry and more.
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Summer Foundation report on effective housing and support models

Published date: 19 July, 2022

People with Huntington’s disease require high levels of specialised care in order for them to manage daily living tasks. Specialised housing for people with Huntington’s disease in Australia is limited. This is in part due to a lack of funding and in part due to a lack of appropriate facilities. For many people, this means that their only option is to live in residential aged care (RAC). Living in RAC is generally not appropriate given that the environment often has a lack of age-appropriate activities, and social interaction.
Tax Appeal 2022

Tax Appeal – help Brendan get specialist support

Published date: 14 June, 2022

The end of the financial year is just around the corner, and we need your help. You can support the valuable work of Huntington’s NSW ACT by kindly making a tax-deductible donation before June 30. Your donations will help our team connect and care for individuals and families affected by Huntington’s Disease across NSW and the ACT.
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Join the Map-HD Registry today

Published date: 30 May, 2022

Please join with the HDNA as we work toward facilitating the best quality of life for every Australian affected by Huntington’s Disease (HD). Now more than ever, research teams and companies across the globe are testing possible treatments for Huntington’s Disease.
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NAA seeks commitments for the 2022 Federal Election

Published date: 10 May, 2022

The Neurological Alliance Australia (NAA) seeks commitments from parties and candidates for the upcoming Federal Election to address the urgent needs of adults and children living with neurological diseases in Australia.  
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HD NZ Conference Information

Published date: 10 May, 2022

The Huntington’s Disease Associations of New Zealand invite members, non-members, families and healthcare professionals to attend their conference on June 10 and 11. There is an online option if you are interested in finding out more visit their website.