The Neurological Alliance Australia * (NAA) is pleased to provide a pre-Budget submission to the Australian Government for the 2023-2024 Budget. This submission focusses on four key areas that will impact people affected by the conditions represented by the members of the NAA.
The urgent unmet needs for people living with neurological and neuromuscular disorders and conditions in Australia are:
- Better treatments, prevention and ultimately, cures for these diseases – cures could well be within reach.
- Improved support for the management and care of people affected by neurological and neuromuscular conditions – through systemic improvements to the health care, disability care and aged care sectors.
Summary of recommendations:
- That the Department of Health work with the Neurological Alliance Australia to establish a new Neurological Mission within the Medical Research Future Fund
- That a representative of the Neurological Alliance Australia be included on the existing NDIA Industry Chief Executives Forum.
- That a Neurological Advisory Group be established within the NDIA, similar to the Autism Advisory Group.
- That the Department of Health allocate $550,000 for the Australian Institute of Health and Welfare to address the current neurological data gaps and opportunities, including:
• $400,000 for a scoping study leading to the development of a minimum data set for neurological and neuromuscular conditions in Australia.
• $150,000 for a data report on neurological conditions in Australia that would report the latest available data. - That a single National Assistive Technology Program be established to meet the needs of people with disability who do not qualify for the NDIS.
To read more about this please click on the link – Pre-budget submission for the 2023-24 Federal Budget
* The Neurological Alliance Australia is an alliance of 15 not‐for‐profit peak or national patient organisations representing adults and children living with progressive neurological or neuromuscular diseases or neurological disorders in Australia. The Alliance was established to promote improved quality of life for people living with these conditions and increased funding to support research. Members of the Alliance are: Dementia Australia, Brain Injury Australia, Emerge Australia, Huntington’s Australia, Motor Neurone Disease (MND) Australia, MJD Foundation, MS Australia, Muscular Dystrophy Australia, Muscular Dystrophy Foundation Australia, Parkinson’s Australia, Spinal Muscular Atrophy Australia, Leukodystrophy Australia, the Childhood Dementia Initiative, the Mito Foundation and Polio Australia.
