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HD News Winter 2021

Download your copy of the HD NEWS_Winter_2021 edition by clicking on the link.

Some of the highlights in this edition are:

  • Walk 4 Hope dates launched – we are asking people to register to ensure we are COVID compliant
  • growth of our NDIS Support Coordination
  • Building support out of Sydney
  • Introducing some of our Community Facilitators
  • Physical Therapy and HD

We hope that you enjoy this edition of HD News. If you have any feedback or would like to get in touch please email info@huntingtonsnsw.org.au

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Latest News and Stories

PGT to start 1st November

Published date: 29 July, 2021

GREAT NEWS. PGT testing funding is available from 1st November 2021 for HD families.

HD News Winter 2021

Published date: 22 July, 2021

Download your copy of the HD News Winter 2021 here. We hope that you enjoy reading the latest news from Huntington's NSW ACT. If you have any feedback or questions please contact us at the office.

Walk 4 Hope 2021….. we remain hopeful

Published date: 19 July, 2021

Given the current COVID developments, we thought it important to provide you with an event update. We are still working towards our scheduled dates in September for Walk 4 Hope. We will continue to monitor the situation and work closely with the NSW Government in the lead up. If we are required to implement any ... Read more

PGT will be available for Huntington’s families

Published date: 18 May, 2021

Huntington’s families now have several options when considering when and how to have children. One of these options is PGD – Pre-implantation Genetic Diagnosis, sometimes known as PGT. This allows people to use IVF technology to ensure that only embryos without the HD-causing mutation are implanted, meaning that these children will grow up HD-free.

A 4000km cycle to Broome

Published date: 19 April, 2021

Erica and Bill are about to set off on a cycle to Broome. Erica will be the support driver for her partner Bill as they cover over 4000km to reach Broome in June. We are so grateful that you have chosen to fundraise for us.

OUR SUBMISSION to the Joint Standing Committee on the NDIS inquiry into Independent Assessments

Published date: 6 April, 2021

Huntington’s Associations in NSW/ACT, QLD, WA, SA/NT and TAS have partnered with other groups representing people with various neurological diseases to make a joint submission to the Joint Standing Committee on the National Disability Insurance Scheme inquiry into independent assessments under the NDIS. In summary, we do not support the introduction of independent assessments in ... Read more