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HD News Autumn 2022

Download your copy of the HD News Autumn 2022 edition by clicking on the link.

Some of the highlights in this edition are:

  • Young People in residential aged care (YPIRAC) – Ability First Australia
  • The importance of storytelling
  • F45 Singleton community Fundraiser
  • Membership survey

Have you considered including a bequest in your Will? Leaving behind a Gift of Hope is a powerful contribution with life-changing impacts. It will assist and educate families in need, providing them with HD specific services to improve their quality of life. It will ensure high quality education is available to HD community members and care professionals within NSW and ACT.

We hope that you enjoy this edition of HD News. If you have any feedback or would like to get in touch please email info@hdnswact.org.au



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Latest News and Stories

lady doing an announcement

NAA seeks commitments for the 2022 Federal Election

Published date: 10 May, 2022

The Neurological Alliance Australia (NAA) seeks commitments from parties and candidates for the upcoming Federal Election to address the urgent needs of adults and children living with neurological diseases in Australia.  
Virtual meeting

HD NZ Conference Information

Published date: 10 May, 2022

The Huntington’s Disease Associations of New Zealand invite members, non-members, families and healthcare professionals to attend their conference on June 10 and 11. There is an online option if you are interested in finding out more visit their website.

HD News Autumn 2022

Published date: 8 March, 2022

Download your copy of HD News Autumn 2022 here. We hope that you enjoy reading the latest news from Huntington's NSW ACT. If you have any questions or feedback please contact us at the office.

Professor Elizabeth McCusker awarded OAM

Published date: 27 January, 2022

We are delighted to share that Professor Elizabeth McCusker has been awarded OAM by the Governor-General in the Australia Day 2022 Honours List. Prof McCusker was awarded OAM for her service to medicine as a neurologist, particularly in the field of Huntington's disease.
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Roche to continue tominersen research with new Phase II trial for early stage HD

Published date: 19 January, 2022

Based on findings from the GENERATION HD1 study in adults with manifest HD, Roche has announced that the tominersen research program will continue with a new Phase II trial. Roche-Genentech-HD-Global-Community-Letter-January-2022   Two information sessions have been scheduled to provide more information. See details below.   Huntington’s Disease Society of America Thursday 20th January at 3pm ... Read more
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We are recruiting – NDIS Support Coordinator

Published date: 18 January, 2022

Huntington’s NSW ACT is recruiting for a full-time position of NDIS Support Coordinator – Huntington’s Disease based at our West Ryde office. This important and challenging role will suit an experienced social worker seeking to work with families living with Huntington’s disease (HD). Huntington’s NSW ACT is the peak body representing the Huntington’s community in NSW and the ACT. We support people affected by Huntington's disease to live their best life.