1800 244 735

Dancing at the Vatican – live online documentary with Q&A

14 August, 2020     19:00:00 and 20:30:00
People meeting the Pope

Huntington’s NSW ACT is very pleased to announce the second national screening of this amazing documentary telling the story of a group of poor villagers from Latin America who have HD and how they travel to Rome for an audience with Pope Francis at the Vatican.

This amazing documentary tells the story of a group of poor villagers from Venezuela who suffer the highest prevalence of Huntington’s disease in the world. They are supported (and filmed) making their way to the Vatican for an audience with Pope Francis.

The Pope is the first head of state to formally meet a group of people with HD.

Only two Australians were lucky enough to be there to witness this amazing event, and now you can watch it too.

You can read about the making of the documentary here.

Due to COVID-19 restrictions, we will be holding a national live screening online with expert Q&A on Friday 14 August at 7 p.m.

Tickets for this unique event are $20 per household. Please click here to register and obtain your registration code. Do not forward it as it’s a use-once code which means the person you forward it to might get to see the documentary instead of you!

Latest Events

High Tea 4 HD 7 May Penrith 14 May Orange 21 May Newcastle

High Tea 4 HD 2023

Published date: 14 February, 2023

During May - HD Awareness Month - we are going to hold a High Tea 4 HD and we'd love for you to join us. A high tea is an entertaining and yummy way for you to show your support. Why not bring your girlfriends or your family along for an afternoon of delicious food whilst sipping on a tea or bubbles. We will have raffles on the day with some fabulous prizes to be won.
Virtual meeting

2022 Annual General Meeting

Published date: 13 October, 2022

The 2022 Annual General Meeting of Huntington’s NSW & ACT Inc. will be held on Saturday 26 November 2022 at 12 noon. The AGM will be available via video conference only. Details can be found within.

Walk 4 Hope 2023

Published date: 30 August, 2022

Register now and walk 4km to raise money to support those affected by Huntington's Disease (HD). Choose to undertake the walk at one of our four locations or register virtually from wherever you are. Our walks are designed for all ages and abilities, and can be completed at your own pace.
Carer Gateway logo

Carer Gateway presentation – The Benevolent Society

Published date: 13 December, 2021

Do you look after a person living with HD in the Sydney metropolitan area; and northern, eastern and western suburbs? Did you know you can access free services and supports through the Carer Gateway? Come and learn about the Carer Gateway – Federal Government Funding and Support for Carers Carer Gateway is an Australian Government ... Read more
Carer Gateway logo

Carer Gateway presentation – CarersNSW

Published date: 13 December, 2021

Do you look after a person living with HD in the Hunter, New England and Central Coast  or the North Coast regions? Did you know you can access free services and supports through the Carer Gateway? Come and learn about the Carer Gateway – Federal Government Funding and Support for Carers Carer Gateway is an ... Read more
Virtual meeting

NOTICE OF 2021 ANNUAL GENERAL MEETING

Published date: 30 September, 2021

The 2021 Annual General Meeting of Huntington’s NSW & ACT Inc. will be held on Saturday 27th November 2021 at 12noon. The AGM will be available via video conference only. Everyone is most welcome — we do hope you can make it!