In May 2021 Huntington’s NSW ACT hosted the national conference. This conference was virtual due to the COVID-19 pandemic. There were four key themes for the conference – achieving quality of care; achieving better policy outcomes; achieving better consumer outcomes; and research update.
Did you know that we offer free Huntington’s disease identity cards? They provide information on HD and have space for emergency contact details. The cards can be attached to a lanyard to help others understand, or kept in a wallet in case of emergency. If you or someone you love would like a HD ID … Read more
HSG and its members offer free educational opportunities to providers so they can offer quality care to their patients and families impacted by HD.
This leaflet has been produced by Roche, in consultation with Huntington’s disease organisations, to provide basic information on clinical trials of medicines.
Need assistance within another state? Contact your state association first.
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A free service for people with cognitive impairment across NSW.
WORDS AMY HALE
As everything changes around us day by day, in ways most of us have never experienced before, we are feeling a lot of uncertainty – in our own lives, for our families, friends and for the world in general. In a situation like this, both the known and the unknown can cause increased levels of worry and stress, especially for those in families affected by Huntington’s disease who are already coping with a lot.
Access our Youth Connection counselling services.
WORDS AMY HALE
Dealing with life’s challenges as a young person can be difficult. School, work, relationships, friendships and family usually provide more than enough to cope with, put the extra challenges HD brings on top of all of this and it’s no wonder kids and young people affected by HD have a much harder path to navigate.
WORDS LEWIS KAPLAN
Moratorium on Genetic Tests in Life Insurance came into effect in Australia from 1 July 2019 and will end on 30 June 2024.
WORDS AMY HALE
As the youth social worker, one topic I encounter all the time is genetic testing and the decision a lot of young people face –should I test or not?
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Huntington’s NSW ACT acknowledges the Australian Aboriginal and Torres Strait Islander peoples as the first inhabitants of the nation and the traditional custodians of the lands where we live, learn and work.
Huntington’s NSW ACT is committed to embracing diversity and eliminating all forms of discrimination. Huntington’s NSW ACT welcomes all people irrespective of ethnicity, lifestyle choice, faith, sexual orientation and gender identity.
